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Scott Benner 0:00
Hello friends, welcome to episode 1114 of the Juicebox Podcast

Kayla's daughter had an A one C of over 13 and a blood glucose over 1000 when she was diagnosed with type one diabetes, now Zoey is home and inquisitive about what happened to her at the hospital and dreaming of being a nurse and her mom is on the Juicebox Podcast. Please don't forget that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan or becoming bold with insulin. Don't forget to save 40% off of your entire order at cozy earth.com All you have to do is use the offer code juice box at checkout that's juice box at checkout to save 40% at cozy earth.com When you place your first order for ag one with my link you'll get five free travel packs and a free year supply of vitamin D. Drink ag one.com/juice box

this episode of The Juicebox Podcast is sponsored by the insulin pump that my daughter wears Omni pod learn more and get started today with the Omni pod dash or the Omni pod five at my link Omni pod.com/juice box. This show is sponsored today by the glucagon that my daughter carries. G voc hypo Penn. Find out more at G voc glucagon.com. Forward slash juicebox

Kayla 2:02
I am Kayla I am from the Midwest. I don't know what else you want to know and how you want me to introduce myself.

Scott Benner 2:08
Oh, that you're Kayla's? Good. That's a good start. Do you have type one diabetes? Or are you the parent of someone with type one?

Kayla 2:16
I am the parent of someone with type one drew me to go over her diagnosis or Kayla

Scott Benner 2:21
you don't have to ask me every time before you talk. It's okay. So how old is your daughter?

Kayla 2:30
It is my daughter My middle child actually. She was diagnosed January 10 of last year that was 20 days before her 10th birthday,

Scott Benner 2:40
Jen 10 I'm sorry. 2022. Right.

Kayla 2:44
2022 Yep.

Scott Benner 2:45
Okay, I'm sorry, right before her birthday. Right before her 10th birthday. Okay. And she's your middle. So you have older younger, how much older? How much younger? Um,

Kayla 2:54
yep, her brother is 12 going on? 13. And then the youngest, it will be nine this fall. Okay. So she's literally right there in

Scott Benner 3:03
the middle. Neither of those kids have diabetes? No, they

Kayla 3:07
know they do not. Thank goodness. That's been a paranor of mine ever since she got diagnosed. And I bet.

Scott Benner 3:14
Yeah. How about other autoimmune issues in your family?

Kayla 3:18
Not with my kids. And my husband has an autoimmune disorder. He has psoriasis and distant family on his side. Come to find out there is a couple of type one diabetics, which we did not know about until after our daughter got diagnosed.

Scott Benner 3:33
Wow. Do you know like how far back in his family? I

Kayla 3:36
would say they probably fourth cousins were kids. Gotcha. Then we're in there so well,

Scott Benner 3:43
okay. And how did you find out afterwards, you start asking around with the family? Yes,

Kayla 3:48
we started asking around and stuff with the family and whatnot. And one of them actually reached out to me while she was in the hospital and to offer support and stuff. And if we had any questions and things like that her daughter had got diagnosed, I think a couple years before ours. She's 16 or so now. So she would have been diagnosed as a teenager.

Scott Benner 4:07
No one ever comes up to you prior and says, Hey, before you make a bunch. We just wanted to let you know that. Yeah, no, no, everybody's like, it'll be fine. It'll be fine. It'll be fine. I don't know what that means. But okay, so Well, that's interesting. So you had somebody reached out who I'm assuming you're not like, very close to right?

Kayla 4:26
Um, no, it's, you know, the ones that reached out we see him at you know, that twice a year of family dinners type of thing. So

Scott Benner 4:33
Was that helpful hearing from someone?

Kayla 4:37
It was she she offered a lot of support, and I actually did reach out to her when I was setting up my daughter's Dexcom for the first time she helped me over the phone with that and whatnot. She's been pretty helpful.

Scott Benner 4:48
Nice. That's great. Okay, so how did your wife because this was obviously surprise to your family? Yes. How did it present? You

Kayla 4:57
know, looking back part of her diagnosis, there were signs that, you know, you just don't really correlate with, you never really think your kid's gonna have type one diabetes, but right before she got diagnosed so that Saturday, she played point in a basketball tournament, she had a couple games, and I helped coach and she kept coming up to me and say, Hey, I'm like, I seem extra thirsty. And I'm like, Oh, you're just playing hard game, just drink some more water, you'll be fine. And that sounds terrible, but and then I remember her hair being staticky. And I'm not sure if that has anything to do with it. But I just remember her hair being she staticky. And then that Sunday, she started vomiting and stuff. And then I was like, Oh, it's just the stomach flu at that point, you know, you still don't register the type of diabetes aspect.

Scott Benner 5:39
Sure. Yeah. No reason to.

Kayla 5:42
Yeah. And then that night, she got the bomb, and it got progressively worse and more like, forceful. And so we did the whole, like woods and all of that she's wasn't keeping anything down. And I told myself in the morning, if she still wasn't getting any better, I would take her in. Well, we ended up falling asleep for a little bit and woke up about I guess about six in the morning. She felt going to the bathroom and her face just she woke up her face was sunken in. And I was like, Well, this is not a normal. Flu. Yeah. And then she asked me, so she felt going to the bathroom. And my son was going over to school. So that was fine. I think my youngest was home, my youngest was home sick, and I can't for the life of me remember why it was a cold or something at that point you there's some details that you just don't remember. So I remember calling my mom to come get my youngest. And my daughter looked at me and asked me and she must have felt different. She looked at me and she asked me she goes, am I going to live? And I was like, Oh, crap that gets you you know. Wow, really? And she did. Like it must have felt different to her to kill like not

Scott Benner 6:49
ironically, or she wasn't trying to be funny or anything. She had a real concern for herself.

Kayla 6:54
No, yeah. Cuz she usually all of my kids can usually handle sicknesses like champs Wow. And so it just, I've always wanted it to feel different to her somehow. And so we took her into the emergency room, and within five minutes that nurses like, has she ever had any blood sugar issues? And I said, No, he took her blood sugar on she, she max out their thing. I mean, he couldn't even get a number. He said she has diabetes. My husband was at work. And of course, I call him and he came. And so her actual stats at diagnosis, she had an agency of 13.2. And her blood sugar was 1121. Holy Hell, her ketones were slightly above six, but she got transported via ambulance down to Children's Mercy in Kansas City. She was in the PICU for overnight there and stuff, they still they brought her blood sugar's down. And you know, we got to go home Thursday evening. So she went there in there Monday, we got to come Thursday evening, it was just a whirlwind. After that, you know, that four days are learning, they throw these binders at you and say, here's a four hour Crash Course crash course on type one diabetes, you know, and it was just crazy. No, I

Scott Benner 7:59
just talk today to a doctor. I'm gonna do a speaking event later this year. And I was speaking to a doctor at a hospital where it's going to be at. And we talked about that very thing about how impossible it really is to hear what's being said to you in a moment like that. And like, maybe you even hear it and you're nodding along with it, but you can't recall it later. You know, you don't mean like, it's just, it's the worst. It's the worst situation because they have to tell you something. And at the same time, you're gonna have very little ability to recollect it when you need it later, when she was right, hmm. like to ask, Am I going to live? She

Kayla 8:37
was and you know, when she woke up the next morning, I just looked at her I knew something was different than her to ask me that that just kind of verified what I was feeling in that moment, too. And it was just, it was not good. But and then of course, you know, at that point, we went down to Casey with her and stayed there. And my mom kept my other two kids and they were worried and you know, see, I've everybody worried. And yeah, it's just and then, you know, before we leave the hospital, you know, we're like, how do we know if we're doing this? Right? They're like, Oh, well, if you're not doing it, right, you'll be back here and it'll be IndieCade. And that's comforting. That's Thank you.

Scott Benner 9:17
Which Kansas City was this? Isn't there to Kansas

Kayla 9:20
City, Missouri. Okay. But you know, honestly, they were great. The nutritionist? Well, the diabetes nutritionist or whatever, the one that gave us the for our course, she was great. And my daughter even my daughter wants to be a nurse when she gets older. She's always been adamant about that. So she was even asking them questions and things like that. No, what are you doing and all of that. So I'm not I'm a note taker, even though when I listen to your podcast, I have a notebook. I'm a note taker. And so luckily, we've never been back in the hospital yet. But, you know, you leave the hospital with his information and stuff and then you start listening to your podcast and And, you know, you leave the hospital at the target blood sugar 150. And then you listen to these podcasts and stuff and you're like, 150 is not okay. And so I've been, I've been more strict with things like that after I started listening to your podcast and stuff, and it's just, yeah, cuz I remember, she got released Thursday, I used Friday to kind of get everything gathered and whatnot. And then I was dealing with some things on the family side, you know, back home that I probably can't discuss. But then she went back to school that following Monday, because she's very adamant about school and sports and her extracurriculars. And so, that Friday, I already have already set up a fiber for meeting and everything with the school. But that Monday, you know, you're still clueless because she's had diabetes for that, you know, about for a week. Yeah. And so I dropped her off at school and her blood sugar's in at 383. I'm like, This can't be okay. I'm like, do I get more insulin? Or what do I do? You know, I just, and But thankfully, we got everything ironed out and stuff. And I've learned a lot listening to these podcasts. And, and honestly, I've probably managed it off of more of this than what the doctors even told me. I go into endo quaintness. And he's like, Do you have any questions? And I'm like, No. And he's like, Well, I'm looking at our charts and everything, because I have nothing, because I really have nothing to say to you.

Scott Benner 11:25
Okay, can I buy $40? Back then, please? Yeah,

Kayla 11:29
yes, exactly. I'm just like, why am I here that every format, but you're

Scott Benner 11:34
not going to offer anything. I would like to suggest you just send me the prescriptions, and I'll take care of the rest. That's Yes. No, that's I mean, it's great that you found a rhythm already in a year, did she adjust well to it, or what was the first couple of months like for her, she

Kayla 11:50
jumped right back into things. So like I said, she went back to school that following Monday, and then she went back to basketball two weeks after diagnosis. And then we were already on the Dexcom, like, a weekend. So that made me feel more comfortable with things like that. She already went back to math team for StuCo meetings, she was super secretary at that time, she went back to attending the youth group every other Wednesday night. We also had her birthday party, January 30. And she was gathered under table with her friends, you know, letting them practice taking her blood sugar. And, um, just as she gives herself her shots and stuff, and so I think she adjusted? Well. I mean, I noticed towards the end of this school year, she got significantly more stressed out with having to leave the classroom to take corrections when needed, because she doesn't like to do her shots in front of anybody. Okay, so we did have kind of an issue with that she's so afraid of missing out on something. And so that's kind of an issue that I think we're still gonna be working into on the next school year, to be honest. Because she won't do a pump. I don't she tried the Omnipod doesn't like the bulkiness of it. And we haven't tried the T slim. But if she doesn't like the bulkiness of the Omnipod. She's not gonna like the T splines. So

Scott Benner 13:05
yeah, well, I mean, if she's willing to do all the injections, I don't see what the problem is. What's the thing that happens in school, you say she doesn't want to miss out or she doesn't like doing it around people.

Kayla 13:14
She doesn't. Both of them, she doesn't like taking the shots in front of other students. And she doesn't like leaving the classroom, she's afraid she's gonna miss out on instruction or something. So that's when she has to take a correction. That's almost kind of an issue. So I noticed she'll kind of ignore my text for a little while because we we text in school and stuff. I've got the nurse on her message thread. And so we all kind of are on the same thread. You know, it's we're all on communication and stuff. And and so I've

Scott Benner 13:44
how does that how does that manifest as an issue? Does she ignore texts that she just slow walk going to the nurse or how does that happen? She

Kayla 13:53
doesn't ignore them essentially, she'll eventually message me back if it's I know she doesn't ever ignore low. But when she starts to run a little bit high, and see I've got my Dexcom, I've got our Dexcom alert set from 75 to 140. And if she starts to run a little bit high on Messenger, you need to take your correction, and I'll let it go for a little while, depending on how high she's getting. But there's been a couple of times where I've had to call the school and say Hey, can you go pulls away? And but then she'll typically message me if she's in the middle of a test or something. I'll kind of let it slide for a little bit. But usually she tries to finish what she's doing before she leaves the classroom to correct Yeah. And I've told her I said, That's okay. Sometimes I said, but sometimes it's, it's not. And she's going into the middle school next year, which is our elementary, middle school is separated. And so I don't know if it's gonna be more of an issue or less of an issue going into next year. It's gonna be a whole new ballgame, essentially.

Scott Benner 14:50
And in that scenario, like she wasn't comforted by the idea of pushing a button on her pump and not having to leave the room.

Kayla 14:58
She was and we've talked to about it. And I had almost got her convinced to try the Omnipod again this summer simply because she wouldn't feel like she had to leave the classroom and stuff. Right. She just I don't know what it is. She just doesn't. Doesn't want that other thing on her body. I don't know.

Scott Benner 15:16
I mean, fair enough, you know? I'm sure she will, if she, you know, decides differently. I'm sure she'll let you know.

Kayla 15:26
Yeah, but see when she's at friend's houses or grandparents or something. I mean, she does it. She does it all without complaining. It's just school. She did not like to leave the classroom. Yeah,

Scott Benner 15:35
both interesting. I would have like given anything to leave my classroom.

Kayla 15:42
She is very particular about trying to get those straight A's and

Scott Benner 15:47
Yeah, well, very nice. Good for her. All right. Well, then, I mean, it's not that big of an issue. I would imagine her it sounds like her management is going well, right. Yeah,

Kayla 15:54
it's going it's gone. Well, so a month after her diagnosis. So by her first appointment, we went to her appointment there endo three months after diagnosis. He was like, you know, he goes I'm sure because I don't think you've probably experienced illness and stuff yet. And I was like, Oh, heck one month after diagnosis. I said all three of our kids went through influenza A the stomach flu and upper respiratory. All within a month. So I was like, we've got that down pat. I know influenza A and upper respiratory ease for ketones tend to run higher. She needs more insulin, stomach flu. She needs less. And I'm like, we've got it. We've got it down.

Scott Benner 16:30
Yeah. Little trial by fire. You got a little bit of everything there in the beginning. Yes, we did. How about how about a honeymoon? Was there any honeymoon to speak of? I mean, doesn't sound like it with what our blood sugar was when you found out but

Kayla 16:43
you know, I? I still don't know. And I've asked myself that, you know, a few times like she honeymooning, or I honestly still can't tell you if she ever honeymoon because I don't ever feel like there's been a flipping point where she's required more or we're not right, because she's still just on. She left the hospital on nine units of insulin a day for her basic bar. And she's still only on 14 units. And it's fluctuated a little bit. Yeah, but but not a lot.

Scott Benner 17:13
She's 10. She doesn't get her period yet. I imagine. No,

Kayla 17:16
no. Nope. And I'm not not looking forward to that. No,

Scott Benner 17:20
trust me. There's a number of reasons you wouldn't want to look forward to that. Some of them you've lived through and are aware of how she looks just like you by the way. I'm sorry to stalk you online. But you and she looks so similar. It's it's really something do you Yes. You see that?

Kayla 17:39
Yeah, I get I get to I see. I personally think she looks more like her dad. But I do get told a lot that she looks like me. So

Scott Benner 17:45
your son looks like your husband. And, and the little ones a mix.

Kayla 17:50
Like him too. But we will stay out of

Scott Benner 17:55
the little one seems like a mix. But the daughter that we're talking, she's got your nose and your eyes and your mouth and like everything. So yeah, that's crazy. Yeah. Very cool. Is that your husband's hair color that they have. So,

Kayla 18:09
so No, his is more of like a dirty blonde. And so, back when I was pregnant with my son, he got reconnected with his biological father and we walked into that family reunion and there were redheads everywhere. And I looked at him I was like, oh, no, and not that there's anything wrong with redheads. But I never suspected that we would have a redheaded child. And I know, there's redheads on my side of the family. But I ended up with two redheads so

Scott Benner 18:36
adorable. Don't worry about that. Yeah, so Okay, so what makes you want to come on the podcast? What? What made you reach out? So

Kayla 18:43
basically, the podcast is just helped me a lot and whatnot. And I just, I just wanted to reach out and let you guys know that and stuff. And it's really honestly like even her illnesses in her first month after diagnosis. I mean, I specifically look for episodes on illness in your podcast and listen to them. And I just

Scott Benner 19:02
Well, you're a good person to ask, Hey, I didn't mean to cut you off. But no, you're fine. Yeah, we do this thing in the Facebook group, right? People ask questions. And there's a group of experts in the Facebook group, which means these are people who are interested in helping and have an understanding of like, what's inside of the podcast when there's so many episodes. It's kind of hard to keep all straight. And they come in and they answer questions like people say like, I have a question about this. They'll say there's an episode about that right here. And so you were doing that you're using the podcast when you have questions. I'm very interested in how that worked for you like you just did you go online, dig them up? Did you ask it and Facebook then how do you find them and then how did you put them into practice? In 2015, I needed support to start making this podcast and Omni pod was there. They bought my first ad in a year when the entire podcast got as many downloads as it probably got today, um, the pod was there to support the show. And they have been every year for nine seasons, I want to thank them very much. And I want to ask you to check them out at Omni pod.com/juice box. If you'd like to wear the same insulin pump that Arden does, all you have to do is go to Omni pod.com/juice box. That's it, head over now and get started today. And you'll be wearing the same tubeless insulin pump that Arden has been wearing since she was four years old.

Kayla 20:32
So I would just go on the Juicebox Podcast, Facebook group, the Facebook group, and hit search and I would type in like a keynote of what I wanted to search, I would just go and start going through the threads and finding an episode. And that would go to the episode and listen to it. So even so I knew there was one day a birthday party was coming up with like a bounce house and cake and all of that as like I'm gonna go find an episode on like jumping and things like that. So I actually listened to like the trampoline episode, the variable. And I applied that to the bounce house. And we've been and I've just I've listened to all the variable kind of episodes and because we do a lot of like hiking and stuff on vacations, and I've noticed even with sunburns, she spikes a little bit. When we vacation. I've got family back in Wyoming when we went out that way, and it's a little bit high of a higher altitude. I noticed her diabetes actually did supremely wonderful on vacation. And I don't know what it was, I can't tell you. But it was the best time that her diabetes acted was when we were up in the mountains at my uncle's cabin, She even ate full fledged spaghetti and I was like she is gonna spike. You know, and she she was wonderful. So I don't know if that's got anything to do with anything. But yeah,

Scott Benner 21:43
at elevations people report needing less insulin. So if you had great outcomes, my guess would be that she was getting more efficacy out of the insulin she had going, which might indicate that what she has when you're home might not be quite enough. So that makes sense. Do you think she ever thought of it that way? But yeah, that's why I'm here kill. You tell the story. And then I think of it a different way. You understand? I never thought of it that way. Yeah. So that that would be my

Kayla 22:15
She did great on vacation. So yeah, that that makes sense, actually,

Scott Benner 22:20
was she and I don't because I My first guest would have been had you not mentioned the elevation. My first guest would have been well, maybe she was more active on vacation. But she plays basketball. So she already is pretty active. So that's what made me go past that and think about the elevation instead.

Kayla 22:33
Yeah, cuz she plays basketball, soccer and, and all of that. So yeah,

Scott Benner 22:38
so it's not it's not a lack of, it's not lack of hydration. It's not a lack of running around. She's doing those things. Yeah. So my thought would be if at elevations, you get more bang for your buck from your insulin, because what you usually hear is the people who live at elevation use less insulin. But in that case, then what you learned was your insulin was more powerful, but you weren't having lows, you were having better outcomes. So then I think well, maybe, maybe then maybe some of your settings need to be adjusted. I never thought of that. That's how my brain works on that one. Anyway, let's get back to how great the podcast is. My gosh, bing, bing. I'm gonna get incredibly serious here for a second. I apologize up front, because you just got done working right. You worked like a full day. And now you're doing this in your car. Yes, I

Kayla 23:29
work Monday through Friday, eight to five. Oh,

Scott Benner 23:31
well, thank you. I appreciate you very much. sitting in your car for work and making a podcast with me. I am not having a great week, my mom has passed away. And, and please, it's not why I'm telling you that I'm telling you that because I've not had a great week. And I didn't record a whole lot this week. Only when I needed to. And just to hear somebody talk about this thing that I made and how it was like accessible and valuable, made me feel good. And I haven't felt good in a couple of days. So I appreciate that very much.

Kayla 24:02
Well, that's that's good because they're, you know, I've I've even reached out. So I used to work with this guy and their kid was diagnosed with type one diabetes actually a couple months before Zoey. And I reached out to her and I was like hey, there's this wonder I don't know if she listens or not sickbay there's just wonderful podcasts and stuff and you know, I went into not my first endo appointment but my second endo appointment and I did have some issues with the school, which I can get into that a little bit later. But I went into that endo appointment and I said hey, I'm like this is what I need on my papers to give the school I said I want corrections above so I think that point they were still saying don't correct until you're oh my gosh, I want to say I was like 175 or something like that. I was like I want corrections on the paper I want to stay stayed above 140 And I said I want it to stay this and this you know because according to this papers it was like give 15 grams of sugar for are low. Well, obviously 15 grams is way too much, in most cases, to be honest. Right? And so the school is wanting to give her so many like 1015 Skittles, and that would shoot her to the stratosphere. And so I mean, I, I literally probably about every concept I apply, I have learned from the podcast versus the doctor's office. Oh, so thank

Scott Benner 25:23
you. That's really great. Yes. I mean, I'm not gonna lie to you. I needed that. That's good. Thank you. I appreciate that very much. So I felt weird about oh, I'm sorry, you have something else to say? No, you're

Kayla 25:35
fine. I was even going to say she ended up towards the end of last year. She ended up having to go to KU. It's in Kansas City as well, to gets she had a camera boys called he, he may angioma. Might have to correct me if I'm wrong, but she had a tumor of blood vessels in our hand. And so when we went to the doctor here, where I'm from versus a smaller town, he's like, I don't, because I can't tell you what that mess in her hand is because I'm gonna send you on those specialists. Well, that's when we got transferred to ku bazille. He was sitting there and he said, The wants to make sure it's not, you know, double check and see if it's cancerous and stuff like that while we're walking out. And my Dexcom starts beeping and she's angled up. And I could tell she was stressed about what the doctor said. We get in the van and she starts crying. I'm like, he should not have said cancerous in front of her. I just but it turned out she just got sclerotherapy. It wasn't cancerous or anything like that. And she's all good now. But so that was my first they kind of put her to sleep for it and everything. And Katie was great about it too. But she's not the only type one diabetic they've dealt with, obviously. So that's, that's clear and good. But I actually you got an episode on something about emergency room visits and kind of things like that. I listened to that before specifically went into that appointment.

Scott Benner 26:55
I love you, you're the best. Thank you. By the way, everyone listening should listen to the podcast the week here with us. It's a by the way also, I thought you said Chuck man, Joan a minute ago and I was like, That can't be right.

Kayla 27:06
He managed him angioma it's like a tumor of blood vessels. Okay, so what they did was they just went and they injected her with this huge needle of stuff to basically kill off the shrink the blood vessels and her tumor. sounds really weird and kind of gross. No, that's

Scott Benner 27:22
amazing that she She did great

Kayla 27:25
and KU gave me updates every so often ever blood sugar why she was put this you know, put asleep and things like that. So and then actually while I was sitting in the waiting room for that, because I switched jobs to I worked in insurance before this, what I do now and so I'm sitting there in the waiting room, you know, still paranoid about her, but so comfortable. And my new boss is like, you know, he goes I need a picture of your driver's license and stuff like that to get you started. And I'm like, okay, cred you know, I just had a lot going on and I started a new job and all of that as well. So

Scott Benner 28:00
I'm just fascinated that I know who Chuck man God is but I don't know any of his music. How is that possible? How would I know a person's name but not their work? Is that a name? You know? It's not it's not you live in the military. I don't know what gets you people you get you can eat seafood there Right? Like it has we do have safe. Well, where would you get it from? It doesn't make any sense to me. It's too far from the coasts at

Kayla 28:26
the restaurant or the store. I'm sure it's not fresh. I don't eat seafood. I can't stand seafood. My husband loves it.

Scott Benner 28:31
I'm gonna guess it's because you've been buying it in the middle of the country. You really should just go west or east and then get some for yourself anyway. I'm just not sure what makes it to you as well. Um,

Kayla 28:40
so the only seafood I've ever tried is dishing out a farm pond and you know, skin and crop in for I ended up.

Scott Benner 28:45
I don't mean like fish out of a pond. No, no. What is this? What

Kayla 28:50
is this? Oh, yeah, no, my husband likes crab and all of that. And

Scott Benner 28:53
we gotta get we gotta get you guys to a coast. Okay. Is there? I know how everybody works. All we need is a basketball tournament in Maryland, and you'll be all set. And I said go to Maryland have some seafood, you'd say I can't do I can't afford it. And if I said oh, those there's a basketball term for your daughter. Yeah. Oh, yeah, we should definitely go. I've been to some places because of baseball. And I get there and I'm just like, Where the hell are we? Like, where are we? Why are we here? Why are we doing this? Oh my gosh,

Kayla 29:26
I I feel that we live in a small town. And so we have to travel a lot for you know, my son's in football, basketball and track. My daughter this upcoming year, she'll have more sports opportunities. So she's done. She's already had basketball and volleyball camp this summer. She'll be in soccer and all of that so we actually have to travel quite a ways I remember leaving work at five o'clock and making it to his track me like right as he's running his last event or something. Yeah, and I mean, they're over an hour away just to go to the sports events. Like how me crazy I'm gonna

Scott Benner 29:57
give I'm gonna give everybody a great piece of advice. Give me two minutes. Okay. If you take insulin or sulfonylureas you are at risk for your blood sugar going too low. You need a safety net when it matters most be ready with G voc hypo pen. My daughter carries G voc hypo pen everywhere she goes because it's a ready to use rescue pen for treating very low blood sugar and people with diabetes ages two and above that I trust. Low blood sugar emergencies can happen unexpectedly and they demand quick action. Luckily jeuveau Capo pen can be administered in two simple steps even by yourself in certain situations. Show those around you where you storage EVO Capo pen and how to use it. They need to know how to use Chivo Capo pen before an emergency situation happens. Learn more about why G vo Capo pen is in Ardens diabetes toolkit at G voc glucagon.com/juicebox. G voc shouldn't be used if you have a tumor in the gland on the top of your kidneys called a pheochromocytoma. Or if you have a tumor in your pancreas called an insulinoma. Visit G voc glucagon.com/risk For safety information. And if you if your kids already older, you probably got ripped off like this and you don't know it. So one year we're told we have to go to Atlanta, Atlanta, yes. And there's a baseball tournament there you have to go there because all the college scouts are going to be there and bla bla bla bla bla, and you have to use this specific hotel. So we all go to the hotel, which I'm going to tell you seemed really overpriced for what it was. And it was dirty like to the point where when Colin I got there, the first thing we did before we unpacked was went back out and bought cleaning supplies and came back and we cleaned the bathroom ourself before we even unpacked our clothes, like that was the condition of the room. And these are the two boys, you know what I mean? Like, we're like, I'm not getting in that tub. So that's the level the room. And then the next year, we head back and they tell us again, we have to go to this hotel. It's for team unity that I said, and I was like, this is both. So I looked into it more. And what I learned was that the baseball team was getting a cut of the hotel rooms. So they forced us to go to the same place so that they could get a cut. And then they would say if you don't use that hotel, your kids might not play like they literally strong armed you like that. So we went down there and Cole and I went to this much nicer hotel for less money. Cole played by the way that wasn't a problem. It was all all BS. And I'm going to count on my fingers. I apologize. 1718 1920 27 years later, my son ends up moving to Atlanta for a job. And we go to visit him. I randomly pick a hotel online, and I walk in and I go, Oh, this is the hotel that Coleman I went to the second year when we refuse to go to the crappy hotel. It was just such a weird moment. Like I walked into the lobby and I was like, I've been here before. And then I had this whole like baseball memory thing. And then it made me think of how they ripped us off of the hotel room, which is why you're now getting told that story. So anyway, they're always photograph. Don't worry, and I'll go over it again. You're either a player or a check. If you don't know which one you are, you're check. That's it. 100% Don't ever like Go with your gut constantly. If you think we're being taken advantage of you are being taken advantage of. So yeah, I agree. That's it anyway, basketball. Hmm, is she going to be tall enough? Can we get some college money out of this? Or is this just a fun thing?

Kayla 33:49
Now, you know, I think this is just a fun thing. She she's always had her. Her heart set on becoming a nurse and then she wants to do like selling and stuff on the side. She's She's it sounds really odd, but she loves painting and stuff too. She's actually a really good artist. Which I've got a picture obviously I can't show you right now. Maybe I can send it to you or something. But she's got this picture. She's painted. That looks really good. But yeah, she's she's always been adamant out. She wants to be a nurse and she's sticking to her guns on that so far. So I guess we'll see what happens in the future. But

Scott Benner 34:26
I was pretty sure my daughter was going to be a pre law student and in stead she's an art school. So you never know what happens, I guess. Yeah, you don't? Yeah, no, it's still I felt good for her. Yeah, and by the way, doesn't mean she couldn't play a little softball in college. And even like, Don't disregard like a nice d3. Whereas we're a shorter white girl could get on the court a little bit and still make a little money. A little money for school. Nothing wrong with that. Nothing wrong with that. Tell her get out there make some money. I

Kayla 34:57
keep I keep telling her you know she just played elementary Basketball. She's just going into middle school. I keep telling him like you need to be more aggressive. Don't be afraid to you know, get in there and just get at it. You know, I remember playing basketball back in eighth grade, I have a girl pulling my hair. I'm not telling you to pull anybody's hair, but definitely

Scott Benner 35:12
a girl. Yeah, definitely give her a little bit aside when she goes for the ball a little slower.

Kayla 35:17
She's too nice. And I just think that's where she's not gonna succeed in, in sports.

Scott Benner 35:23
I honestly, it takes us like two more years. And then that all goes away. Like I know, like, the girls were still worried about each other back then, like I watched it too with Arden played a lot of softballs a young person. And when they were younger, if somebody was like, I don't know, like, not get hurt badly. But you know, something would happen. All the girls would almost stop like a bunch of little moms. They're like, are you alright? And then they hit a certain age. And when that happened, they were like, keep going. She's hurt. So it goes away pretty quickly. That nice thing, although I'm waiting for it to come back with Kelly, I think it will. She's almost 50 But I think she's got a nice back up anytime now. What do you think? Are you Yeah.

Kayla 36:11
I don't know. Now my youngest, she's, I wouldn't have to worry about her. You know, being aggressive in sports. She's, she's like a mixture of it all. I don't even know what she is yet.

Scott Benner 36:23
So, so tell me, tell me a little bit about your goals. So I know where you're, I know what your your range is, which is terrific that you're keeping on CGM, by the way using a Dexcom or a libre Dexcom

Kayla 36:33
G six, she actually tried the g7. But she kept losing data signal. She's got a habit of leaving her phone in like one room and trying to go throughout the house, while her range isn't as far with the g7. Right. So she went back to the G six for the moment. I mean, I told her I said eventually, I'm pretty sure they're probably going to stop producing the G six. So you're gonna have to do the g7. At some

Scott Benner 36:54
point, I would imagine I don't think right away. I mean, obviously, they have their business arrangements with a lot of these like tandem and Omnipod. But tandem and Omni pod are like, this will be a little little incongruous with actual time, but you're starting to see them talk about G seven for Omni pod five G seven for control IQ, like they're obviously working on it and getting pretty close to bring it out. I have to tell you Arden's been using G seven for a couple of months now. And I haven't seen any disconnects, like so I don't know if that just means that Arden is like tied to her phone differently. But I haven't had a problem with it. Like she's been at college and home ball. She's using it so far. And I haven't seen anything like that. So I don't know, like how it goes. I also don't know that they don't find too in the them a little bit after they're out in the world. Like this is my supposition. I don't know anything. But I think sometimes, once they get out in the world devices, not just saying CGM and they see they get the return date on what's happening. They do have the ability to adjust them a little bit. So I always think that to maybe, you know,

Kayla 38:06
it's common. Yeah. And, and she actually mentioned that she goes, I think I might want to wait a few months to try it again and see if they make any changes. It's like, okay,

Scott Benner 38:14
I mean, it's much smaller, super easy to put on, like the warmup period thing is, what 30 minutes, and sometimes it doesn't even last 30 minutes. You can I don't know if you got to use it enough to do the overlapping. But that's amazing. You know, I told Arden about that upfront. And she's like, I'm not doing that everything I tell her. She said she's not doing by the way case, you're wondering what you're in for the last 10 years. But now that she's home, I'm like, Look, just try it. I'm like you're on like the g7 is going to run out in like six hours, like put the other one on now. And just leave it on for a couple of hours. And then whenever you think about it, just go in the app and switch it over, and then tear the old one off and throw it away. A there's no warm up because the warm up happened while you were still getting data from the old, the old one. And it's also soaked in a little bit. So it's more accurate when you turn it on. It's fantastic. Like what a what a what a great little improvement, you know, really cool, actually. So you shall get there. She thought a pump was too bulky or she didn't want to wear two things.

Kayla 39:14
She thought the Omnipod was too bulky. Okay, and she's had a couple of instances where the Dexcom has ripped off. So one time her and her brother were actually wrestling around in the front yard and he accidentally ripped it off, which it hasn't hurt her when it's ripped off, I guess. But she read houses a lot. So and I don't know if that's part of it. Maybe.

Scott Benner 39:34
And she it's new to her as well. I mean, honestly, at some point when you show her, if you put this on and this on, it's going to make decisions about your insulin for you and we're not going to like we won't that when your blood sugar starts going up the pump will bring it back down again. But that might change your mind a little bit. So and

Kayla 39:52
I predict, you know, going into this school year where she's had a lot more sporting events, you know, without me and things like that. I'm pretty that she'll eventually come to a point where she's gonna come to me and say, hey, I want to do the pump. Yeah, cuz she's gonna realize it's a lot easier when she's out of those games and things like that and practices and stuff to manage with the pump versus, you know, the shots still

Scott Benner 40:13
nothing wrong with it happening in her time. You know, let her let her come to it on her own. I think it'll be easier in general, if it's a decision she makes herself.

Kayla 40:23
She's taught her friends how to give her shots. Her brother and sister she taught how to give her a shot. Yeah, well, it's like you're more brave than I am.

Scott Benner 40:32
Oh, you just don't think you'd there's some people you wouldn't let stick you with the needle? I

Kayla 40:37
would. There's no way. No way in. Heck, I would let my eight year old child shoved me with needles. So she's a lot more brave than I am.

Scott Benner 40:47
Where she just hasn't been through enough to know not to trust those kids yet. That's very cool. So I got them, sir. Nope,

Kayla 40:56
you're fine. I was gonna say I remember the first time she stayed the night anywhere because she's usually the kid where her and her friends. I mean, during the summer, they're always at each other's houses. And so the first time she ever stayed the night, so that actually that summer, she really didn't stay the night, much of anywhere, which I think probably got to her a little bit. So the first time she actually did say that I was at her friend's house who doesn't go to our school anymore. She's goes to a different school now with her with a family that they live with. She stayed the night there. And I trust this couple. I mean, they've got a ton of kids. Plus, they're raising these other three kids now. Both their parents died in car crashes a year apart. My daughter was really close to that family and so that those were terrible funerals. And that was just a terrible time. Yeah. Her friend was in the accidents as well. And there was one point all we knew was that she had a brain bleed and they ended up messaging and FaceTiming every day while she was in the hospital and that friend did the same for her when Zoey was in the hospital and it's just been a lot. I remember I went to pick up Zoey the next morning and she actually called me Zoey started beeping lo about it was about three in the morning. And I waited. I told myself I was like I'm gonna wait five minutes and then see, well, she ended up she texted me she goes I'm on my way to her. Now she goes, I've got this. It's like okay, perfect, you know, and she straightens out and everything and the next morning I go to pick Zoey up and and she had corrected it with an applesauce pouch because Zoey is a very hard sleeper. I mean, I tell her to open her mouth and all I do is pour some stuff in our mouth and she swallows. It sounds terrible. And I'm like you need to learn how to wake up when you move out which is gonna be a while but she's like, I went to take Zoe's blood sugar just see what she actually was. And she goes I couldn't get any blood to come out. She goes some squeezing on her finger then she's like I finally just said screw it and just went to go open the applesauce Pasha but some of them out. But she goes, then some squirted all over her arm. She goes, then I think she because at that point, so we just shut up and woke up. And she goes, I had to do it all around, because I don't know how you do it.

Scott Benner 43:06
Well, to alleviate one of your possible concerns. i The only thing I was worried about when Arden left for college was that she wouldn't get up in the middle of the night if she had to. And I mean, I was like really concerned. And it was never a problem is really Yeah, absolutely fantastic one she knew it was her job to do. She just did it. And to show that it's a semi conscious decision that she made. When she can't, when she comes home for a break, she gets home and the first thing she says to me is like, you know, you're gonna have to like wake up in the middle of the night, if I get low. Like, like, I'm here, I'm home to rest, like I'm here to sleep. I'm not here to like, I'm not taking care of myself in the middle of the night. So it's, and I'm not going to tell you there weren't a handful of times where I didn't have to wake her up, like there were. But there were more times where I was I would text and say like, Hey, I you know, I don't know if you see your low and because I took care of it already. Like and it was like three, four o'clock in the morning a couple of times. So she was getting up and taking care of herself. And it was really kind of heartwarming. And at the same time, if I'm being completely honest, I'm telling the full picture. I also felt bad, because what it feels like to me is that she made that the same decision that we all make, you know, his parents, like I'm not going to I'm not going to sleep as well because of this and I'm just going to be okay with that. So I feel bad that that she had to do that and that obviously that's going to be her life. But I mean, I don't want to say it is what it is but there's no getting around it and so yeah,

Kayla 44:48
and that's that's one of my worries when she gets older and obviously it's inevitable she's gonna move about that's always been in the back of my mind. And there's you know, there's other things when your kids get older too that are in the back of your mind on how gonna affect their future and all of that, but I try not dwell on it anymore.

Scott Benner 45:04
It's good advice. But

Kayla 45:07
I'm like, you know, we're just learning to live with it. And honestly, it hasn't held her back at all, except there was one instance after volleyball camp just a few weeks ago, all of the girls up and decided to go to one of the grandparents house to have a pool party. Well, I was at work. And so my mom, the kids, my mom was supposed to go get her from volleyball camp and stuff. And so I didn't find out anything about this. And so I went to pick her up from my parents house, you know, after work and everything and, and then she seemingly breaks down and starts crying. And I was like, what, what's the matter? Then she comes out and tells me that all the girls decided to do is swim party at her grandparents house. And she? Well, for one, she's like, I didn't have my swimsuit with me. And I was like, well, we would have figured that out. Like, I'm sure grandma's got some, you know, and then she goes, I didn't think you'd let me go. Said what? And she goes, I didn't think you'd let me go. And at that point, I was like, I'm like, we would have Grimm. And I would have figured it out for you to go on it. You know, like, I don't want you to ever feel like you can't go participate in those things. Just, you know, because of your diabetes. I said, that's not the case. And that's the first time she was ever approached with a situation like that, where it's been a spur of the moment type of thing. Yeah. So she was actually really upset about that. She was the only volleyball girl that didn't go and I said that stuff comes up in the future. I said, message me your grandma. I said, we will figure it out. I said, I really I said, diabetes should not hold you back from that

Scott Benner 46:40
it has that happened again, as she handled it differently. Nothing has

Kayla 46:44
happened again since and I think after I told her that she she was better and everything. But part of me has that mom guilt to like, what have I done to make my daughter feel like I would say no. Oh,

Scott Benner 46:55
no, I was gonna say that's where I was headed next, Kayla, like, but it's not that not that you should feel like, Oh, what have I done that made her think that? I just thought, but that is in the back of her mind. Like when that came up. And everybody else is like, oh, yeah, she's thinking, Oh, I have diabetes. We're not ready for that. We're not prepared. I probably can't do it. And I know that it's it's an unbearable thing. Like as a parent to watch happen. I listened the other night. Arden had her period and her blood sugar's were, like, difficult. And somebody got food. And I know she was hungry. And somebody said, Hey, I'm gonna order I forgot what they were ordering something and Arden's like, No, I'm okay. But I knew she was hungry. And so I said, are you just not eating because your blood sugar? And she's like, Yeah, like, she's like, my blood sugar is too high. I can't eat right now. And I was like, Okay, I said, Well, we could push it really hard, and, you know, order some food and just, you know, bring it in. And then she was just like, now it's okay. But that's not what she meant. She didn't mean it was okay. She meant now this is socks, and I just don't want to think about it. So it was I know what you mean. sucks.

Kayla 48:01
Yeah. And I've ran into that situation with her a few times, too. And one was actually she wasn't high or anything. She's actually running really great numbers. Is that a birthday party yesterday? And I mean, they're obviously there was cupcakes and whatnot. And I said, I asked her, I said, Are we destined for a cupcake? And she goes, No, she goes, I don't, I don't want one. About 10 minutes pass. And I was like, I'm not trying to pressure you as a diabetic to eat a cupcake. I said that I see the look, you're given these cupcakes. I said, Are we dosing for a cupcake? She's like, No, I'll be fine. As like, that's like, that's not you know, like, I can tell that's not the answer you're wanting to give me and I said what about half of it? I said again, I'm not pressuring you. And she goes, I said, if you want I said we can just do I was like I told her I said, if you want we can just do a crap ton of insulin right now instead, and as you start to go down, you can nibble on your cupcake. She's like, Yeah, we'll do that. So I push I think it was like three and a half units of insulin with what her ratios are. And as she started to go look she's playing outside to I mean, they live kind of they've got like a ditch with some woods on the back of their property that my kids go plan and so she's down there playing everything and then I messaged her and like alright your angle Danna come up and have a few bites you come up have a few bites and she level out and then she'd go play again and I mean, it took maybe it taken you know, 45 minutes an hour to eat her whole cupcake but eventually she did and her numbers ran perfectly but so I could tell she wanted that cupcake. She just didn't want to end up going high or anything. I'm like there's ways we can do this. So you don't go high. You just may not be able to shove it on your mouth like these other kids.

Scott Benner 49:49
These monsters that are just like and then running away. You don't and better to eat it. Honestly better to eat it a little more slowly to begin with. Right like yeah, We all should probably be doing that. So Oh, good. I'm glad. I'm glad she didn't just keep saying no, it's it's good to know that she did. She's like, Oh, I work with us. And it was nice of you to stick with it too, and to notice how she felt, and not to just go, okay, she doesn't want it, then never think about it again. Look at you, you're good mom, Kayla. I,

Kayla 50:20
I try sometimes the kids try my patients. But I do try.

Scott Benner 50:24
Oh, there's a ditch behind your friend's house, you can push them into if there's a problem.

Kayla 50:30
You know, there's, if I would have seen this board to begin with, I think there was like an old flimsy two by four that was laying across the ditch to connect to properties. And the kids would cross out all the time. And my husband's for anyone that lives on the property. He's like, I built them an actual bridge, you know, so they wouldn't have to cross that two by four. And then I saw the board. I'm like, if I would have known they were crossing that, like, they wouldn't ever been allowed to cross that to begin with them. Like they're lucky, nobody ended up hurt.

Scott Benner 50:59
There is a creek that ran behind where I lived when I was younger. And we had to, like get over it to basically avoid a 15 minute walk to somewhere. And you know, in my mind's eye, this creek was running like, it was a lot of water. And it was deep. And we would like jump from logs to rocks. And like, you know, this whole thing. And I went back as an adult. And I looked down there and I was like, I is this even like a trickle, like what's going through here. But in my mind's eye, it was just a river that ran through there. So anyway, it's a it's fun when you're a little doing stuff like that I'd rather run across the board tooth, and then the bridge probably, you know, like, gosh, well, do you you said earlier, you were concerned about your other kids? Have you done trial net or anything like that, to look into whether they have markers,

Kayla 51:50
you know, I I get paranoid about them. And maybe it's I've never had anxiety before, but I think I have anxiety now. And so if I noticed the kids drink in, like an extra amount of water or something or like, one day, I'm picking Connor from basketball practice, and it was actually a football practice. And he's like, he's like, I was super thirsty today at practice. He goes, I drink more than usual. I was like, let me see the bottom of your feet, make sure his feet weren't dry and stuff like that. And he's like, mom. And so some of the signs. And I've got the trial that actually for both of my kids sitting at home, and I've had them sitting at home for about six months, and I can't bring myself to do it. And I don't know. It's like, you know, if I don't know, is that better than if I do know if they have it? You know, I don't? I don't know what to do in that instance. I don't know what I want to do yet. So I have these kids sitting at home that I've done nothing with yet. Because I don't know what decision to make, I guess. I

Scott Benner 52:50
think that's a fairly reasonable response. And it's only you're only a year into it as well. So yeah.

Kayla 52:57
And then part of me is like, you know, if the kids know what those tests are for, and if they asked for the results, and if I'm like, Yeah, you know, you tested negative for all the markers, but if I don't tell them, then they're gonna know like, well, oh, my gosh, I'm worrying. I tested positive for markers. And I don't want to lie. So I mean, there's that other aspect. And maybe I'm overthinking the trial on that. And all of that I have no idea

Scott Benner 53:18
does sound like you're thinking of a little bit, but I understand why I understand what you are. I mean, what I would say is, if your kids have markers for type one diabetes, then they're going to get type one diabetes at some point? Very likely. Yes. And that doesn't change anything, does it? What does it tell? I?

Kayla 53:42
I don't know. Because on one hand, you know, you worry about if your kid's gonna end up with it or not. But yet on the other hand, if you know your kid's gonna end up with it, maybe you worry a little bit more about when it's gonna happen. I don't know, oh, you're worried no idea. You're

Scott Benner 53:54
worried worry that would come with an actual confirmation would be worse than the worry you have worrying about what may or may not happen. Yeah, maybe

Kayla 54:03
I don't know. And there's been there's been times where, like, I'm telling you, I'm so paranoid with the other kids getting it that the other kids like they started vomiting or I think something's happening. I have taken my other kids blood sugars. Sure. And there was yeah, it's been crazy because, you know, looking back on Zoey, before her diagnosis, and honestly, probably at least a couple months before I noticed she had been getting more more moody than what she normally issues normally not my movie child and I was attributing it to you know, a girl getting older or starting to go through puberty and things like that. Then I noticed her start drinking more. She has never been my kid to wet the bed and there was a couple times where she went to bed at night and she is probably going to be so mad at me for saying that. But and then I noticed she I thought she just wasn't gaining weight. And I'm like, Well, maybe she's just getting taller and stuff. And then there was, oh, gosh, it was a few days before her actual DKA. She'd come up to me and she goes, Mom, because my feet are really dry and I'm looking, I'm like, they're starting to crack. I'm like, What the heck, you know, and, and you still don't put two and two together at that point. Or maybe I just didn't, because I never thought, you know, your people who don't experience type one diabetes are very uneducated on the signs and symptoms, and just educated and uneducated in general, as type one diabetes. And so just putting all of those together, you know, you feel really, I feel the mom guilt very badly. Oh, boy. And I mean,

Scott Benner 55:45
you know, you did get her to the hospital, and she was okay. Right? Like, how would you like know, to look for something like that? I don't know. I understand. You feel that way? I would hope that in time you wouldn't anymore. So I mean, I'm not trying to talk you out of the way you feel I felt the same way you did. But it does go away if you let it, I guess is the is the point. Yeah. And Kayla episode 156 is called worry is a waste of imagination. Did you not hear that one?

Kayla 56:17
No, I listened to your episode on mom yelled, but not that one. Maybe I need to listen to that one. Because?

Scott Benner 56:23
Because the truth is, if there's something to worry about, or not, just worrying about it without knowing is. It really is you're just imagining something bad. It's not. It's not based on anything, at least if you're going to worry, let it be about something real. Because then you're sure Yeah, because then maybe a you've got a good chance that you won't have to worry about anything. And if you do have to worry, at least your worry will be targeted and maybe valuable. Like maybe you would go to T sealed and ask them about you know, that medication that stretches out the onset of type one. Like maybe your kids would do that. And put it off for a while. Like, that would be pretty cool. You know, like, I don't know. Yeah. I get what you're saying. Don't get me wrong. But Don't torture yourself. It's a short life. Okay.

Kayla 57:14
Yeah, yeah. Oh, I think I'll get over the mom kill eventually. But I'm, it's been about a year and a half since diagnosis. Maybe I should be over it already. I have no idea. But it's there. And I think the hardest part of her diagnosis, honestly, as far as getting everything up and going and not necessarily squared away, but just trying to adapt to our new lifestyle, essentially was with school because she wanted to go. I mean, she was right back in school that following Monday, and, and the only other type one diabetic in our school. She was in high school, she just graduated this year, and she was on an insulin pump. And I think she made sure diabetes differently then, then we manage my daughter, my daughter were more strict and things like that. So in the elementary, they really had no experience and and I'm not going to say names and go into situation entirely because I think if they heard this certain administration would just go off the deep end. But but it was really rough in the beginning. There was one point I had, I had someone I said, we changed those lunch ratios for lunch and actually the endocrinologist day because that was still the point where within a month of her diagnosis, we're still going to the endo for guidance and stuff. After a month i i haven't asked the endo for guidance on any of her dosages after a month and for diagnosis, because they just they played it too safe, I guess you could say. But um, I mean, I had one of the staff yelling at me, like why are you changing this? And I mean, they're not educated in type one diabetes whatsoever. And I mean, yelling at me in front of Zoey, I'm just like, how is this okay? And I finally got it somewhere. And then the whole texting diabetes saying and and see the nurse man so we were all in it and, and this and I had to fight to get that I had to fight to get basically Zoey to be able to kind of self manage at school and stuff. Because they they were not okay with it. And I finally had to just gather an email together to everybody involved in the superintendent and stuff and I had to attach like a copy of the Missouri statute that says she has a right to dose and carry anywhere anytime in a school setting. And I had to resume at one point I had contacted the Children's Mercy social worker and I explained everything that was going on to her and she goes honestly, she goes if you have any further issues, she goes I would. She goes I would take it. Take it farther up the line. Yeah, she's like, I would contact the ADA and all of that. And so it got pretty hairy for a while. But ever since ever since that email I sent them. I was professional in it and stuff. Ever since that email I sent them. Things have been pretty good. Good. So we'll see how next year goes, but But yeah, it was very, very rough in the beginning with the school. But

Scott Benner 1:00:21
it was a big deal. When Arden was younger, one of our outgoing governors signed this bill, like literally on like, the last day, you know, when they just, you know, when they do all this stuff on the last day, they think wasn't going to be good for them getting reelected. But once they're done, they're just like, they sit through everything. So they made it okay for kids to give themselves insulin in New Jersey in their classroom. That was a long time ago already. But it was amazing how resistant they were the school was like, no, no, it has to be in the nurse's office and they talk to you about it. Like it was like, there was like a real reason. And I couldn't wrap my head around it. I then that that governor, he signed that bill. And then I found out about it. And I was like Orton to the software and some of the room now and they were like, okay, it was just like that, like, okay, so there was no real reason not to do it. Other than we were just doing what we were told, like, I gotcha, and

Kayla 1:01:11
see the reasons I was told why they didn't want her to carry her own supplies, and not even her own emergency pen. And was what if other kids getting her stuff?

Scott Benner 1:01:21
Oh, I would say those kids should keep their hands off. It's not theirs. But

Kayla 1:01:26
that's exactly what I said. And and I had to fight to get, you know, for the way to be able to text me for guidance and things like that. And I said, Look, I said none of you are experiencing type one diabetes. I said Zoey, and I have it pretty fine soon to what works for her. I said, I'm not asking for you to allow us to be on our phones to message every I said, you know, Tom, Dick and Harry. I'm like, it's literally strictly for diabetes, LA. And then they had come back with well, you know, what, if another student sees on a film, they're gonna think they can get on theirs or have special treatment? I said, Wait a minute. Yeah. I said, I don't care about the other kids. And I said, I know for a fact there's other kids in that classroom that get special treatment. So you don't even go down that road with me.

Scott Benner 1:02:10
I actually told a person one time I said, you tell those kids, if they'd like to get an incurable disease, they can have their phone to. Yeah, they think it's worth all that or otherwise, you'd be an adult and manage the situation. Like I yeah, my daughter is going to be unwell or less well, because you're worried that a kid in her class is going to look at Instagram. And that's not something you can deal with. Like, try harder. You know? I actually that reminds me one time when Arden was in middle school, she came home like very earnestly, and she goes, Dad, at the end of the day today, we were having this conversation about something. And I'm like, right, and she was it was the end of the day. And I'm like, okay, and she goes, so I looked at Instagram on my phone. And she's like, I'm so sorry. I was like, because we told her the phone is just for diabetes. It was sorry. It was like it was the end of the day. Right? And Susie, I said don't worry about it's fine. She was but it was on their Wi Fi. I'm like so okay, don't oh my god, don't worry about it's gonna be alright. So she took it seriously. We told her like the phone is for this. It's not for that other stuff. And you know, the other kids are going to be complaining and she's she said she heard it a couple of times. Like what's not fair. Norton was like, fair, nothing about this this fair? Yes, exactly. Gosh. Well, it sounds like you work through it. Okay, though. Yeah,

Kayla 1:03:35
we've we've worked through the school issues. I think for the most part, it was really rough in the beginning. And I say I had a lot of a lot of issues with them and stuff, but I think we've ironed them out and whatnot. And I know one of the arguments about Zoey self managing was She's a kid and they don't think she should have to take on that kind of responsibility. And I I told them I said, you know, she is a kid but she's a kid with type one diabetes is it in this is, um, like, it does suck if I could take it from her, I would have said but this is her life. Now this is our life. And if she doesn't learn how to manage it now, so she's never like, I want her to manage it. So she grows up to be healthy and doesn't have all these complications and, and things like that. I'm like, I like I can't help that you feel that she didn't have to have that responsibility. I'm like that. She does. I mean, point blank. I can't take it from her

Scott Benner 1:04:24
right. Also in a world where the truth is that really well, like educated people only are able to about halfway give you good information when they're helping you with your diabetes like no offense to anyone. It's a great it's a great job. And I think it's a it's wonderful that people do it. But you know, somebody who's a nurse at a school is not prepared to take care of like diabetes beyond you know that there are medical people and you can give them a checklist and they can follow it and everything which is terrific. I mean, it's amazing. But if you're looking for them for like deeper understanding, it's likely not going to come from them. And now you're, you're saying they're the end all be all. And I don't know how that goes, you know? And

Kayla 1:05:05
you know, I remember what one of the comments that really got me the most what kind of reached that crescendo of me emailing and finally getting what I want, you know, the texting, texting diabetes and then her being able to self manage kind of anywhere, anytime, which I wasn't asking for anything. I don't feel like crazy That was crazy. You know, I was I had got a phone call from when the administration that just that said, you know I just with the school nurse and everything she gets like, I think she just feels like you know, you're kind of taking that control away from her. I said what control she's my kid. I'm like I get you guys are early get really responsible for why she's in school and stuff. I said, but I'm not asking to keep anybody out of the loop. I said, I'm not saying she can't go to you guys at all. I'm like, I literally just want to be able to manage this in the best way possible for her. So she doesn't have the higher blood sugars and things like that. And there's there's been so much other stuff with this at the beginning, but way too much to get into. But yeah, and I think it's all good now. And we've kind of reached that crescendo. And you

Scott Benner 1:06:13
may, you may have had a very similar situation than I did when Arden went into high school. And I sat in a little conference room and the nurses like, well, this isn't how we do it. And I was like, oh, that's something I'm like, it's how we do it. So am I worried about you? Meeting? So is this meeting about how you feel? I'm like, we're not worried about you.

Kayla 1:06:37
Yeah, fantastic. And then, you know, it got to the point where is that we come home and she's like, I'm not comfortable making decisions at school on my own. And because I feel like I'm gonna be judged for it. And I was like, Well, great. I mean, I didn't really know how to respond to her at that point or handle that. But I mean, we finally talked it out.

Scott Benner 1:06:54
She thought she'd be judged by the school and the nurses, the school

Kayla 1:06:58
just she thought that she would make a decision that they thought was wrong. And I guess essentially hold it against her or something. I don't know, you should

Scott Benner 1:07:07
always hang out with Audra for a couple hours. She wouldn't think I got any more.

Kayla 1:07:14
I've always told her I'm like, Look, if you end up getting yourself too much in Flint, I said you have sugar. If you end up giving yourself not enough insulin. I said you have insulin to give. I'm like, Well, you know what? Episode is gonna go wrong.

Scott Benner 1:07:26
Episode Three clearly says texting is. I still think like, if you're parenting a child with diabetes, texting is the absolute wrong son Aang song on song, where did that word go? It got caught my throat unsung. There we go. I'm not going to try to say the fourth time because I got it the last time and I'm good with it. But it's technology that you can't ignore. It's very valuable. It takes away the waiting in between it allows the immediacy for treatment. It allows for a kid to say hey, I'm not sure about this, or for you to say hey, what are you doing? And like just, you can have a 32nd Texting conversation that eliminates so many problems and really doesn't interfere with their day. And yeah, I think it's just the way to go, honestly. So

Kayla 1:08:15
yep. And I listened to your episodes on that. And I listened to probably about every single episode I can find on on people's issues with school and five, a four and all of that. And I've kind of implemented all that from the juice box plus the research I've done with you know, like the ATA and you know, Missouri statutes and I just threw all that at the school. And I was like, Here you go. I'm like, I am not asking for anything nobody has asked for before. Yeah, I said, so.

Scott Benner 1:08:41
We're not doing anything crazy here. I mean, you've said it a couple of times. We're not doing anything crazy here. Just try to think outside of the box for half us I hate that term, because it sounds douchey. But, but like just try just just try to think outside of the box for two seconds here. And like, we have a thing it's going to work. Like it's going to work so much better than the thing you want to do. And isn't her health like in general, like not just her health by the way day to day, but her expectations for her health and our expectations for autonomy and all those other things that you don't realize you're building as you're going like you if you teach her? It's not on me it's on somebody else. That's how she grows up thinking and if you teach her well I'm busy at school today so with 200 blood sugars, okay, well then that's how she's going to manage her health moving forward like it that'd be a hard a hard thing to break later as a bad habit. Yep.

Kayla 1:09:38
And and that's, you know, what I told the school to I said, I'm trying to create good healthy habits now and her to manage it now. Yeah, I said, and honestly, she is my most strong willed child. But she's she's done pretty fabulous with this. I mean, we don't sounds terrific. We don't let it hold us back and we're about to go in a couple of weeks on on the river float down south for about six to seven hours. And last summer, we went to Michael's cabin in the mountains, it's completely off the grid, no cell phone service for anything, we were up there for three days. And I mean, it's, we don't let it hold us back. But I mean, we do have some things to work there still and stuff. I mean, I'm sure there's things that haven't come up yet and just the major a year and a half that we've been dealing with this, but they will,

Scott Benner 1:10:23
they'll come up and then you apply this, this way of thinking to those things. And you'll be surprised how well they work out. You know, just be got common sense. Put yourself in your health first, that that really is the way to get to it, honestly, and this thing, you know, I want to cut, we're kind of we have to wrap up here in a second. But like, the way you pass, you probably have to pay or go home or something. But

Kayla 1:10:48
I'm still staring at all of I work at a agricultural equipment company, a John Deere dealership, essentially, and some ended. So you're saying all of these combined for the last.

Scott Benner 1:10:58
But um, you talked earlier about like, you didn't think you were a person who had anxiety, but now you feel like that. And I don't know, like anxiety to me, I'm not discounting anyone's anxiety for certain, but it feels like a word that gets thrown out around a lot lately. And you know, I mean, if there's something you're worried about, then I think you should try to eliminate that worry and see if that feeling doesn't change for you as well. I just I didn't want to get off without mentioning that. So I mean, if there's a thing you're worried about, stop worrying about it. I don't mean just like magically stop worrying about like, find a way not to worry about it, like prove it to your site. You

Kayla 1:11:36
know, my husband's pretty much told me the same thing. It was like what's gonna happen is gonna happen. And I think I'm most honestly worried about my other two kids getting it. And I know, there's families out there with multiple type ones. And I don't know how they do

Scott Benner 1:11:47
it. Yeah, that they do it, because that's what they got to do. And you would too if Yeah, yeah, same thing. Same way. Everybody does everything. You know, just get up in the morning and don't give up. It's pretty much it. Yeah, like you and I are married, so I can tell you just to calm them down. But your husband can say that. And if I went downstairs and said that to the lady downstairs, you wouldn't get the podcast anymore, because I'd be dead. But yeah, here we are. And it's good advice. Yeah, I could use that advice given to me sometimes, too. By the way, I thought I wasn't saying because you're a lady. Sometimes you just, you know, you get a little wound up in something. And it's hard to, it's hard to get away from and then the one person you count on to help you is the one person who you push back on when they when they try to help you. So life's weird. I don't want to, I don't want to get too deep. It

Kayla 1:12:37
is and I probably do just need to calm down and stop worrying about you know, what could happen in the future. And I've never been that tight. But I mean, it's, I'm working on it. Let's just say that.

Scott Benner 1:12:49
Honestly, being serious, like you're aware of it. I think that's a big deal. Yeah, yeah. You don't I mean, you're not just telling like you're not telling me like I'm upset. I don't I like it's not unfocused, your your response to it, you know what's happening. So anyway, I say, here's what I do. I'd give the kids a trial, nothing. It's very likely going to come back that they don't have markers, and then you'll be okay. And if it comes back that doesn't have markers light on for a while. That's fine. You can do whatever you want. You're an adult.

Kayla 1:13:21
That is sure. I mean, as a parent, I guess we can't say that we've never lied to our kids. And

Scott Benner 1:13:26
it's not really lying. Is it? Like I'm being silly. I know, I brought this up earlier and I bumped everybody out. I'm gonna do it one more time. Okay. So people are gonna hear this some six months after this happened. So try while you're listening not to feel bad, please, please. But my mom like you've, if you listen to this podcast, like my mom got cancer, she had a significant surgery that removed it. She did chemo and rehab for a year, she was pronounced cancer free. She moved out to Wisconsin to live with my brother. And maybe about six months later, her cancer markers started to creep up again. And we did exactly what we were supposed to do. But there's no doubt like, you know, going through chemo like slowed her down a little bit. So you know, her memory wasn't as good. She's tired a little more often, like those sorts of things. And we could get her to the doctor and be like, Oh, it's a heart doctor appointment mom, she'd like a heart doctor appointment. And you know, like, and even if the doctor said right in front of her, like, you know, it's not like she's listening with the same year. She was 30 years before that. So when we took her back and the markers went up, we asked the doctor Well, what what are you going to do? And he goes, Well, right now we can't do anything except check the markers again in 30 days. And they did they went up again. So they gave her a CT scan. And the scan came back clean. So we there was nothing for us to really do in the moment. And anyway, we never told my mom that they were checking on her cancer. We never did and for the last six months for life, she got blood tests where they track the markers. And the CT scan that showed that my mom's cancer return pretty significantly arrived a couple of days after she had a stroke, and just a day or two before she passed away. And I have to tell you, I'm not just happy that she didn't know, I'm proud that she didn't know. Like, I'm happy that my mom lived the last year of her life thinking she beat cancer, and it never came back. And I'm not saying don't lie to your kids for 20 years about they have markers for type one. But if they do that, on your time, when you're able to articulate it well, in a setting that is controlled, that is right for them, you'd be able to tell them that you don't I mean, like, yeah, it's not lying. It's just good management of relationships, I think. I don't know. I'm sure people

Kayla 1:15:55
think I think my son could handle the news. But I know my youngest one 100% would not not be able to handle it yet. There's around the time of her diagnosis. Within that year or two, there was just so much death within the community. I just, she's still right. She was still worried over her sister's diabetes. And I just have to reassure her, like, you know, everything is handled. I mean, you know,

Scott Benner 1:16:20
it's She's little, like seven, right?

Kayla 1:16:23
So she's a, she'll be nine, okay, in August.

Scott Benner 1:16:26
Listen, if my if I had your situation, and my eight year old's numbers came back, and she had a marker for type one diabetes, and he told me Look, it's possible that she could get it and it's possible she won't get it. I would not pull her aside and tell her that. I just wouldn't. I'd be like, Alright, listen, we know now to pay attention a little more. I'm not gonna burden a nine year old with this an eight year old with it, right? If it came back, she had four markers, and they were like, Look, she's gonna get diabetes the next time she sneezes, then I'm like, You know what, then I might start talking to her about a little bit and even not even talking directly right away, but just prepping her in ways that she might not even see coming. I don't know, there's a way to do it as but I'm saying you can do it. Yeah, I've been talking to you for an hour, you're a bright lady, you'll figure it out. It's better than you wander around worried all the time about something that probably isn't going to happen. makes me upset. Plus, I imagine you're not able to tell you.

Kayla 1:17:23
I can only imagine what goes through his head.

Scott Benner 1:17:25
You don't have to imagine we would tell you if you asked like we were not smart enough to keep it to ourselves. So

Kayla 1:17:30
it kills us women want the truth or what you guys are thinking or not. I

Scott Benner 1:17:35
don't imagine you do if you could hear inside of my head, Kayla, I still sound like I'm like 16 years old. Like, where do you the other day here? Let we're gonna end here, right? I've been married for like 26 years, like a really, really long time. And my wife comes upstairs, and we're gonna go out like she's been working all day. And I guess if I'm being honest, she was wearing like a sports bra. And we're gonna go out so she comes out to put a real bra on. And she does it in my office while we're talking but under her shirt, and all I could think was Would it kill her to take that off while she's putting that bra on? Like, why is she wearing the shirt? While this is happening? Like I was 15 is what I was thinking. I've seen my wife's boobs so many times, Kayla. And I swear to you, we're sitting there talking about where to go to dinner, all I could think was like, I wonder why she's like, why wouldn't she just take that shirt off to do that? Anyway, so we're thinking something along those lines, in case you're wondering.

Kayla 1:18:35
Yeah, my husband the same way we've actually I'll be 30 for July 2, but we've been together since I was 16. So it's been quite some time for us to and there's moments where I'm like just to see have to you know do that every time I do the dishes or just pushes the buttons on purpose and I think you probably know what I'm talking about.

Scott Benner 1:18:56
I actually my wife came out of the shower one day and I could hear the little voice in my head Goobies I don't know what to tell you. It's how it works. I'm sorry. I get act like it doesn't you give tell people like oh, I listen to this guy. He's really good at diabetes seems really smart. But I sort of got like, that's a she. I was like, Oh, this is it? This is it. I don't I'm sorry. I apologize. I feel dumb saying it. I'm not gonna lie to you. But it's the absolute truth.

Kayla 1:19:24
So no, I'm my husband's the same way. So yeah, that's something kids.

Scott Benner 1:19:30
Yeah. Don't ask us what we're thinking if that's not what you want to hear. Yeah,

Kayla 1:19:34
I've learned that already. I think. And

Scott Benner 1:19:37
by the way, the minute it's not like that, the minute it's not like that, she'll be like, Why don't you Why don't you're interested in seeing this and I'm like, oh, okay, like I can't possibly win. So, you know, I just know you guys can't I just I'm playing the game till she decides to smother me with a pillow. That's all which I'm assuming this the decision has been made. She just doesn't have the nerve to do it yet. But it's It's one day I fully expect that's how I go out just

Kayla 1:20:02
expecting it right now. That's why she hasn't done it yet.

Scott Benner 1:20:05
I guess I should have recorded here. If anybody hears I died my sleep call a cop. That's not what happened. It's not what happened. It needs to be investigated. Okay. Thank you. All right, Kelly, you were delightful. I appreciate you doing this very much. Thank you. I really do appreciate you taking the time. Yep,

Kayla 1:20:21
not a problem. Thank you. Oh, hold

Scott Benner 1:20:23
on one second.

If you'd like to wear the same insulin pump that Arden does, all you have to do is go to Omni pod.com/juice box. That's it. Head over now and get started today. And you'll be wearing the same tubeless insulin pump that Arden has been wearing since she was four years old. A huge thank you to one of today's sponsors, G voc glucagon. Find out more about Chivo Capo pen at G Vogue glucagon.com forward slash juice box. you spell that GVOKEGL You see ag o n.com forward slash juice box

if you're looking for community around type one diabetes, check out the Juicebox Podcast private Facebook group Juicebox Podcast type one diabetes, but everybody is welcome. Type one type two gestational loved ones. It doesn't matter to me. If you're impacted by diabetes, and you're looking for support, comfort or community check out Juicebox Podcast type one diabetes on Facebook. Thank you so much for listening. I'll be back soon with another episode of The Juicebox Podcast. The episode you just heard was professionally edited by wrong way recording. Wrong way recording.com