#1063 Time is a Construct
Jonathan is 16 and has type 1 diabetes.
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Scott Benner 0:00
Hello friends, and welcome to episode 1063 of the Juicebox Podcast.
Friends I'm going to be speaking with Jonathan today 16 years old has had type one diabetes for five years. He's from a very small town and does a fantastic job on this podcast today. Jonathan's using control IQ, and his mom is a big listener of the show. While you're listening, please remember that nothing you hear on the Juicebox Podcast should be considered advice, medical or otherwise, always consult a physician before making any changes to your health care plan, or becoming bold with insulin, which I just saved 40% off of your entire order at cosy earth.com you can with the offer code juice box at checkout. You can also get five free travel packs in a year's supply of vitamin D when you make your first order at drink, ag one.com/juice box are you newly diagnosed? We're looking to start over, check out the diabetes Pro Tip series that runs between Episode 1001 1026. If you can't find them in your player, I mean you should be able to but if you can't check them out at juicebox podcast.com diabetes pro tip.com. We're in the feature tab of the private Facebook group Juicebox Podcast type one diabetes. This episode of The Juicebox Podcast is sponsored by Dexcom dexcom.com/juice. Box head over now learn about the Dexcom G seven, the G six how to get started, find out if you're eligible for a free trial, and so much more dexcom.com/juice box where the same CGM that my daughter wears were a Dexcom. My
Jonathan 1:55
name is Jonathan. I am 16 year old. And I've been living with type one diabetes for about the past five years.
Scott Benner 2:05
Five years.
Jonathan 2:08
And Lunas small town in Kentucky go to a hot public high school play on the soccer team and the tennis team. They're nice. And there's a few other kids that I know of that also have type one diabetes in the area.
Scott Benner 2:27
Are they friends or just people you're aware of?
Jonathan 2:30
Kind of both? I know a few of them pretty well. And there's others I know have you
Scott Benner 2:36
become friends with them? Because they have type one or do you know them prior to that?
Jonathan 2:39
No, I didn't know that prior. My mom tried to start like a little type one diabetes group here. And it kind of fell apart. But a few people did show up and I've become close to them. John,
Scott Benner 2:52
your mom loves you. She started a group just for you. So you wouldn't be lonely. Did it work?
Jonathan 2:58
It without doing it anymore? Because COVID happened. So that kind of set that back? But
Scott Benner 3:03
yeah, but you held on to some people from it. Yeah. It's interesting. It's excellent. Actually, like small town. Like, how many people about do you know? I
Jonathan 3:14
would say maybe probably around 10,000 ish. Not too many.
Scott Benner 3:20
Okay, Kentucky, like, closer to Ohio or Kentucky like Kentucky.
Jonathan 3:26
We're in the more southern part of Kentucky.
Scott Benner 3:29
Okay. All right. You're 11 years old when you were diagnosed? Do you have any brothers or sisters?
Jonathan 3:34
Yes, I have two brothers and one sister all younger than me.
Scott Benner 3:39
They're all younger than you are. Is there? Is there anyone else in your family even going as far out as like aunts and uncles and people like that who have type one diabetes.
Jonathan 3:48
I have a few great uncles with type one diabetes and one uncle with type one diabetes. The young man there.
Scott Benner 3:56
I'm sorry. It's your mom's side of your dad's side.
Jonathan 3:59
This is my dad's side.
Scott Benner 4:00
Okay. Do you have any other autoimmune issues?
Jonathan 4:05
Not currently.
Scott Benner 4:08
John, you've been doing it? Yeah. You've been doing your homework. You're like not? Yeah. Yeah. So how about again, in the family, celiac thyroid issues, anything like that?
Jonathan 4:17
I'm honestly not too sure. I don't think it's much more than type one diabetes.
Scott Benner 4:24
Anybody run to the bathroom after Christmas dinner? Something could be silly. I don't think so. All right, you know, nobody's ever like wow, packets up real quick after we finished this turkey in the mashed potatoes. Yeah, no, definitely. Okay. All right. And but I'm not making fun of celiac for the people listening or like it's a barista here. I know. It's serious. It's trying to get John comfortable and calm and like so we can talk Jonathan are John would you prefer? I really don't care. You can call me either one all right path and that's what we're gonna do. Let's see. 11 years old. What Have any I mean, if of any, if anything, I guess what do you remember about being diagnosed?
Jonathan 5:08
One of my teachers noticed kind of notice that I was going to the bathroom pretty often she I think she said it was about every hour or so. And she told my mom without telling my mom, if that makes any sense. And she already knew that like, of the symptoms. So she's like, Okay, well just go get him tested. So I suddenly, from my experience, I suddenly got pulled out of school, and I had no idea why. And we were going to the doctors, and we went to see a family doctor that we had no. And they gave us a meter. And they sat me down to get some labs done the primarily test my blood sugar. And then we went home. And with the meter they had given us we tested my blood sugar. And I was like, it read high. And I think with that meter is over 600 or something like that.
Scott Benner 6:00
Wow. Do you remember how you felt? Well, previously, I
Jonathan 6:04
had the flu that December, and this was around February. And so everybody had told mom was getting kind of worried. And everybody told her that it was probably just because the flu and I got hit hard. And I'll eventually regain the way. And then once the teacher had told her about those symptoms that she had seen. Mom was like, Yeah, this is definitely what it is. And so has
Scott Benner 6:28
your mom ever shared with you? Was this something she was concerned about? Always because it was in your family?
Jonathan 6:33
She did have said to me that she knew that it was always a possibility that one of her kids would get it but she never knew like when or No, no,
Scott Benner 6:45
I understand. But it does sound like it was in the back of her mind. And just because she said she made the lead sentence.
Jonathan 6:50
Yeah, in the back of her head. So she was always was kind of watching. Yeah,
Scott Benner 6:55
yeah, she made the leap very quickly, which is great. And probably why you're weren't having a ton of symptoms besides the weight loss and the and the bathroom thing. Hey, maybe that you think that teacher was a creep? She was just watching little kids go to the bathroom or? No.
Jonathan 7:09
Actually, that teacher has a son with type one diabetes. He's older. I think he's a grown adult now. Yeah, I'm just kidding, for sure. But yeah, she had she had also known about those symptoms. And that's kind of the reason she kind of brought it up. Yeah,
Scott Benner 7:29
I'd be interested to hear from a person in that perspective, because maybe she didn't want to be the one to say it directly to your mom. Like maybe it's, you know what I mean? Like maybe some people want to be connected to and people's memories. I wonder, you know what I mean? Anyway? So how do you start? Like, what's the what's the deal? You get injections? First, they give you a pens? And is it a pump? And are you in charge? Or do your parents take care of it.
Jonathan 7:56
So when I first was diagnosed, and we left the hospital, they had us on the pens. And mainly the doctors would mess with the carb ratios and stuff, we didn't change much. And then pretty soon after, maybe a month or so they got us on a CGM. It was the Dexcom G five at the time. So that helped a lot. And that like, after fingers sticking like almost eight times a day, like and then immediately getting onto the every five minutes, you're getting a new reading. That was that was pretty fun for me for the those first few, probably months or so. Yeah, that I had that new experience, you know, making life easier. Yeah.
Scott Benner 8:41
And so that kind of outweighed for you the idea that you had to wait where something? Yes, yeah. Did you have concerns about having to wear it?
Jonathan 8:51
No, not really. I've never really had very many concerns of having having to poke myself with that and leaving it on me every seven or so days was
Scott Benner 9:02
so you don't have a lot of thoughts about what do other people think about this? No? Yeah. Okay. And you play would you say two different sports? Sorry.
Jonathan 9:12
I play soccer, and tennis. Alright,
Scott Benner 9:15
I'm not gonna count soccer as a sport, but okay, you do two different activities. That's I'm just kidding. And and has it ever been a problem for you? Like, how do you find activity with diabetes? Like especially in the beginning, were you able to keep going or was there a relearning process? At
Jonathan 9:31
the time I was first diagnosed, it was like, it was just soccer for the middle school. And that wasn't the worst because I would normally once I actually started playing in starting, I would have my I was a tandem. And I would just unhook it for the games that I played. And so that didn't bug me much. But there was, I think it was last year and The year before the I was in a junior varsity match. And I was wearing the Omnipod on my arm and that got torn off. And I didn't go out the game, I just tossed it to the sideline to fix it later because I wasn't worried about it. But that's probably the most that's happened with the technology and during while playing sports and all those
Scott Benner 10:19
games, that's not bad at all. Yeah. Did you learn to like that there are better places to put them? Well, I guess my question is, which one are you using? Now? Are you on control? Like you are?
Jonathan 10:29
Yeah, I'm on control IQ now. Am I
Scott Benner 10:31
okay? Did you find when you disconnected to play that your blood sugar's would get high afterwards? Or did they not?
Jonathan 10:38
I think it honestly depended. Because obviously, like when you're in the rush of the game, you have those adrenaline rushes, which always normally raise my blood sugar, but like, also, I have a lot of physical activity, like I'm running up and down the field constantly. So yeah, I think it and honestly, I don't remember, but I think in the end, just thinking about it probably ended up balancing itself out and maybe eventually having a load afterwards.
Scott Benner 11:06
Have you learned how to do activity now with? I mean, staying connected and in managing it, like stably? Or do you still disconnect to this day?
Jonathan 11:17
It just depends. Right now. We're in the offseason for soccer. And so I'm playing tennis right now. But for tennis, because it's not such a physical sport. I keep everything on. And that works pretty well, for at least tennis. For soccer, though. I'm not sure what I'm gonna do this next year. Last year, I would normally just kind of flip it and tuck it into my shorts. And have to keep that on.
Scott Benner 11:47
Yeah. All right. I do want to. So I want to ask you about management, like specifically like, do you handle it? Like present day right now? Is anyone involved in your help? You know, is there people helping? Are you doing it by yourself? Or
Jonathan 12:04
mainly, it's mainly me. I carb count I Bolus for everything that I well, I shouldn't say everything I you know, I'm doing all that. But my mom, she, she's a she follows my graphs pretty consistently. And she, she knows like when she sees something in the graph consistently. She knows like, what kind of changes to make, like I'll make a few changes every once in a while. But he or she mainly makes the changes and I do pretty much everything else.
Scott Benner 12:34
site changes, is you you keep track of them. And when like your sites have to be changed in the CGM has to be changed.
Jonathan 12:41
Yeah. I mean, I just keep track of it by the alarms that the devices give me.
Scott Benner 12:48
Okay. Are you paying attention to those alarms? Kind of? How How often do you find yourself going? Oh, my CGM just expired. I, I wasn't, I didn't remember that was gonna happen.
Jonathan 13:02
I normally do the changes in the evening. So it's not the worst when it expires. But I have done that before. We're like, I'll get the, like, 30 minute alarm, and then I'll go start something else. And then it'll expire. And like 20 minutes later, I'm like, oh, I need to change that.
Scott Benner 13:19
Yeah, I said to so my daughter wore a G seven last week to try it. And she's gonna go back in and keep using it when her G six is run out. And so I sent her a text, she's in college, and I said, Hey, you're in a great position here. You can put the G six on, you know, even maybe six hours before the g7 is going to expire. And then you won't have a gap without your CGM. And then she didn't do that. Yeah, I'm looking at a text from her now that says, I'm so busy at school. I don't know how I'm gonna get any of this done. And I responded time is a construct, which is not going to be helpful for her. But I thought it was funny. Anyway, okay, so you're definitely using the G six because using the control IQ, and right now in April of 2023, GS six is the only thing compatible with it. So but you've done both, you've done Omni pod five, you've done control like you. It sounds like you've tried a number of things, but prior to that you were just using a tandem pump. Yes. Okay. What made you try an algorithm at all. Now let's talk about the Dexcom g7. The Dexcom g7 is a small and wearable continuous glucose monitoring system. It sends real time glucose readings to your Dexcom g7 app or the Dexcom receiver. Use my link dexcom.com forward slash juice box to learn more and get started today. You will be able to effortlessly see your glucose levels and where they're headed. This way you'll be able to make better decisions about food, insulin and activity. Once you're able to see the impact that those variables have on blood sugar, you'll begin to make more purposeful decisions and have better outcomes. My daughter has been wearing a Dexcom My daughter has been wearing a Dexcom product for so many years, I don't even remember when she started. But today, she wears the Dexcom G seven. And it is small and easy. And oh my goodness, are you going to love it dexcom.com forward slash juice box, you can head there now and click on the button that will get you your free benefits check or just hit that other button that says Get Started. When you use my links, you're supporting the production of the podcast dexcom.com forward slash juice box.
Jonathan 15:48
Well, the first pump that was on was tandem. And eventually they upgraded to the Basal IQ, which was just it suspended your insulin, when it saw you're going low. And that that was honestly probably the first big game changer with how we manage because we could be slightly more aggressive to keep my numbers and trust that the pump would be able to keep it stable because it would suspend the insulin. And then they upgraded it to control IQ where it pretty much did everything it increased it would give you those auto boluses decrease standard suspended your insulin and then we do know that the pumpkin almost do pretty much everything as long as we had those main settings right like the Basal CF factor, you know? Yeah.
Scott Benner 16:38
Jacqueline, where'd you learn all this? On
Jonathan 16:41
my mom, and she'd probably say the Juicebox Podcast. Oh, okay.
Scott Benner 16:44
Oh, okay. Sorry. Oh, my God, we'll get back to that in a second. Hold on, we just wrote down Am I annoying to you? So because you just explained that so clearly, just I can be more aggressive because the algorithm will try to stop even Basal IQ which was, you know, like you said, just cutting off your, your Basal insulin, if it looks like you're gonna get low, and you can be more aggressive. And that works, right? Like, just Yeah, via getting some of the insulin up front ahead of the food, in a more aggressive manner can sometimes help. What would you describe your eating style as, honestly,
Jonathan 17:18
it's probably pretty unhealthy. And it's with carb counts, it's decently consistent, I'd say normally 60 to 100 carbs for almost every meal. So there's that somewhat consistent range that I eat. But it's normally like the quick processed food, I can throw in the microwave for like two minutes and then just eat it.
Scott Benner 17:45
John, I'm going to have more younger people on the show, because that was the most honest answer anybody's ever given. I'm like, what's your what's your fueling plan? Like Jonathan, you're like, I go with pretty unhealthy. Some people like it's not I'm a pescatarian. I'm like, Yeah, are you so but oh my god. So hold on that really made me you. Got I'm trying to put myself in the ground as fast as possible. Yesterday, I had a Twinkie hot dog. But it was so your is it about quick. Accessibility to food. Is it about that you cook for yourself? Is your mom like a layabout? Is she not helping you with meals? What's going on? Exactly? Well,
Jonathan 18:25
for like lunches and dinners. They normally cook like dinners like my dad, he's kind of the main cook in the family. He'll cook a pretty convenient dinner. That's good. So dinners is usually but you know, we live in America. It's still like all the processed food and stuff. So obviously, it's not going to be the best but for lunches, and breakfasts, lunches tend to be at school and in the schools who just isn't also the best. Also, click Process stuff, they can just click in massive amounts. And breakfasts ends up being like oatmeal or something I can just throw on the toaster. Yeah, don't
Scott Benner 19:04
don't throw me on the toaster. But I hear what you're saying. Yeah. So let me ask you a question. You have a firmer grasp of what you should be eating than many people your age. But you're not. Do you not like, like singular foods, like a piece of chicken or a piece of beef for, you know, like asparagus, like, are you not that person? Or is it about time?
Jonathan 19:31
It's honestly probably about time, like, I could sit down and I could like, learn how to cook this stuff real nice and make it good. But like, I have a really busy schedule, like with school and then all the extracurriculars I do. I ended up not being at home very often where I have that like 30 minutes to an hour to be able to cook some nice chicken or a steak or whatever.
Scott Benner 19:57
Yeah. You know, it's interesting. We Because I think that when most people look at another person's lifestyle, and they, you know, they make a judgement about it, they always say, Oh, they don't try hard enough, or they don't understand me, they don't have money. But it's none of that for you. It's just It seriously is just time and availability to that time. I know what you're talking about, it's incredibly difficult. To prepare a meal, I guess I shouldn't have said that. It's not incredibly difficult to prepare a meal, it's incredibly difficult to find the time to prepare a meal. And then you have to cook it, you have to eat it, and then clean it up. And before you know it, you're an hour, 90 minutes later, and for somebody like you who's involved in activities and going to school, and I mean, you have a are you dating? No, no, yeah, that'll let you try that. And how come you're not dating? Nobody's interested? Or you're not interested? It's
Jonathan 20:56
kind of sort of both. Like, I have had some people ask me out, but like, it's either I don't feel ready or like, I just kind of don't want to at the time, like, yeah, no, I understand that part of time. You know,
Scott Benner 21:11
I guess you do you mind telling me I what I don't feel relat ready means putting
Jonathan 21:16
in that time commitment, you know, like, preparing myself mentally, for the challenges it may bring, you know, because it's a whole new aspect to life. Jonathan, I'm
Scott Benner 21:28
laughing because you have no idea. And you're not going to be able to prepare. So I've been married for like ever, I don't know, like 26 or 27 years. And still twice a day. My wife says something to me. And I think what is she talking about? Why? Why are we talking about this? What's happening? Yeah, man, are you have no idea? Have you considered being a monk? That's not a bad thing to do. And, you know, keep it on the back burner. Let's say people are lovely. And you will get so much out of an interpersonal relationship that is special like that. And at the same time, it it'll be utterly confusing to you. I think it's I think it's growth. But that's if you get lucky and get like a decent person like you could get a wacko you don't I mean, like, Yeah, have you had any your friends like dating somebody that they're like, Oh, my God, I, the one I got is nuts. Does that happen? Yeah, yes. Yeah. Good times. Good times, Jonathan. Yeah, there's plenty of time for that. Don't rush. I like the way you're handling. Do you know it's interesting. If people are really listening, you sound like you come from a really solid families. For Kids, mom and a dad in the house. Your mom put a lot of effort into your, into your health. You play a couple of sports, you're really well spoken and understand everything and yet I have found a way to infer that it's possible your mom is a layabout, and your teacher was a creep. Your friends girlfriends are all whacked out of their skull, which nonetheless, I'm just trying to be entertaining Jonathan, but I just did hit me a minute ago. It sounds like you have a really wholesome phallic life. I'm like, why was that lady watching? You go to the I just got up an hour ago. I'm not really awake yet. Okay, I have to ask you just because of where you're at. A lot of pressure about drugs. Where are you able to stay away from it?
Jonathan 23:18
For the most part, I've been able to stay away from it. The honestly the big thing is vapes, like I've been asked to do vapes, I don't know, like, I know that there are a bunch of druggies all over but yeah, I can pretty consistently stay away from most of the
Unknown Speaker 23:35
What grade are you in?
Jonathan 23:35
I'm a sophomore.
Scott Benner 23:37
What's the harshest drug you hear spoken about by kids? Everyone's
Jonathan 23:40
doing a little probably ended up being like cocaine, but it's probably most commonly marijuana. And
Scott Benner 23:46
when they're vaping, or they vaping weed or they vaping like oils and stuff like that.
Jonathan 23:51
Most of them will probably say it's oils, but I really have no idea.
Scott Benner 23:56
And so you've been able to keep a core people around you who aren't doing that. Yeah, that's excellent. Good for you. I'm assuming that you don't smoke cigarettes, and you don't drink? No, no. Do you think you will?
Jonathan 24:09
Honestly, not sure. But I will try and stay away from it as long as I can. Because I just know the health health benefits from it. You staying away from your
Scott Benner 24:19
parents drink? No. You I think that gives you a better shot, honestly, because it doesn't seem like part of life. I've really noticed that. That people I know who came from households where there's like always beer or something like that, or just wine in the evening. And it's just it's very normalized, which I don't not really making a judgement about, but I think when anything's normalized, then when you get older, you just think oh, I guess I'm supposed to drink coffee now or you don't I mean, like something like that. So alright, yeah. So you play two sports, you're not dating, you're not smoking, and you're not getting high and you're not drinking. What do you do? For the rest of your time,
Jonathan 25:02
like I said, I'm really busy outside of school, because the ball sports almost practices every day, almost to average two to occasionally one and a half hour to two hour practices every day with those sports and I do. I do play the trumpet and that. Are you serious? Yes, in the band. I play the trumpet. And every once in awhile, they'll do an after school practice. For like the whole band, right before a concert or something. So yeah. Outside of school, I'm probably home. I'd say roughly around 530 to six almost every day. I
Scott Benner 25:40
have to ask you, and you don't have to answer if you don't want to. But you're coming off like an indignant to me. I don't know if you know that word, but I'm trying to figure it out. Are you? How tall are you?
Jonathan 25:48
I'm around six, three, you're athletic. I would consider myself athletic.
Scott Benner 25:54
So you're a sixth theory, athletic, soccer tennis playing trumpet player who's not dating, getting hired drinking? All the dots right now, Jonathan, what do you think of that? My kids are gone. I could use a couple more years that are carefree. But with a person in the house. By the way, I called your teacher creepy earlier now like describe your body to me, Jonathan. You're a bit of a I'm gonna ask my last question to put this puzzle together. How are you a decent student? Good student bad student?
Jonathan 26:26
Oh, yeah. I'm an AP student.
Scott Benner 26:28
What do you thinking of doing after high school?
Jonathan 26:30
I've been thinking a lot about electrical engineering, or just something in engineering in general. Really?
Scott Benner 26:36
You think you can pull that off? Your math is strong?
Jonathan 26:40
Yeah, it's pretty strong.
Scott Benner 26:41
Oh, let me Can I say something to you? Sure, you can hold out you're gonna get a good girl. Do you see them saying? Like, you don't have to don't don't don't? Um, yeah. Is that what you're doing? Oh, is that what you didn't say earlier? Has somebody up to your standards not come along it? Not
Jonathan 27:00
necessarily. But, like,
Scott Benner 27:03
what the hell's happening here? How come? Oh, my God, come on. Kids aren't like you. I mean, you understand your diabetes? Like, you're thoughtful. Like, how did this happen? Did your parents do this to you? Or is this natural? Honestly,
Jonathan 27:17
they they have said, like a good example of like, what to look for, you know, like how to act around people. So yeah, I'd put most credit on them. Hmm.
Scott Benner 27:25
Religion a big part of your life for now?
Jonathan 27:28
Oh, yeah. It's a pretty big part.
Scott Benner 27:30
Okay. Is this that have a hand in keeping you in line? Or is this just who you are?
Jonathan 27:35
We have like a small church here. So we're pretty tight knit, you know. So that's probably it's probably also helped. I'm trying
Scott Benner 27:43
to get to the fact like, I'm trying to find out if like, when one of those kids is handy, that vape and they're like, Hey, Jonathan, try this. Are you thinking yes, I'm going to were you thinking? No, I can't because God won't like it. Or do you think I don't want this? It's just not for me.
Jonathan 27:58
It's a little bit of God. Like, you know, and it's like, I just don't want to okay, it's an it's a mix of both.
Scott Benner 28:07
I got you. Oh, listen, everybody needs a motivator. That's perfect. I listen, I'm not questioning this is working. You've never murdered a squirrel and buried it so people wouldn't see or anything weird, right? Jonathan, you'd ever merge? We're all right.
Like, I'm trying to make sure you don't have a mental illness. Jonathan, right. So I checked to make sure you're not torturing small animals. I asked a question. And there's this long pause and I'm like, Oh, we figured it out. Someone watched this kid. But oh, my god, six three is that is a gift. Do you have a tall family? Are you the only one?
Jonathan 28:50
Oh, yeah. My uncle who also has type one diabetes, he's he's pretty tall too. So? Which,
Scott Benner 28:56
which? Which one of these sports are you thinking about in college? Tennis, right? Honestly,
Jonathan 29:01
I'm not sure. Honestly, I'll probably end up trying out for either one. I don't think I'm a get a scholarship for either. So.
Scott Benner 29:09
But Jonathan, here's what you're missing at an engineering school. It's not like Steffi Graf is showing up there. So you really might be able to see what I'm saying. Yeah, there's their standards. What am I trying to say? You are athletic, and smart. Doesn't happen like that. And I don't mean smart. Like, not everybody's like my kid plays But initially, I don't mean that, like Everybody calm down. I mean, like engineering smart. That's a different level of understanding. And an athletic is a mix. Like it is a mix. You don't see often. My son just graduated from college recently. He played baseball throughout school. He got a lot of money for playing baseball. And his, his major was quantitative economics. And you don't often hear somebody who can hit a baseball out of A minor league baseball stadium and understands whatever the hell quantitative economics is. So that's what I'm saying for you. This is you have a nice launch here. Do you don't screw this up? Jonathan, you're gonna have a decent life. You excited? I guess when you put it that way. Yeah, man think big. What kind of car do we want as an adult? Honestly,
Jonathan 30:19
I really don't care something that I can that will work, something that will get me point a point a point A to point B pretty easily, Jonathan, partially destroy.
Scott Benner 30:30
We're gonna talk about your diabetes in a minute, because I want to hear how you're managing and everything and everything you've gone through with the two different systems. But first, we're, we have to continue playing this game. I'm gonna give you a million dollars now. You have a million dollars. You're an adult? They're 23. Okay, are you moving out of Kentucky? Are you staying? Honestly, I'd probably stay. All right. And the kind of car you have not important to you? Not really, what kind of how big do you think you would like your house to be? Do you want some big crazy house or something small and manageable? Does it matter to you if it's new or
Jonathan 31:06
old? Honestly, I'd kind of like maybe an older house, I could kind of fix up and make how I wanted. Jonathan,
Scott Benner 31:15
I think you're gonna have a problem when this comes out. Because every free mom, every mom that hears this, that's gonna try to figure out who you are. And they're going to be sending their daughters to you. Do you see what I'm saying? They're gonna be like, meet that boy right there. You don't want anything a gold chain? A PlayStation in every room? Nothing crazy comes to mind?
Jonathan 31:34
No, not really. Wow. Good for you.
Scott Benner 31:39
I you know what if I hadn't, if I had a bunch of money, all of a sudden out of nowhere. I've said this before on here. So some people won't be surprised by it. I would collect my family up and ask them about their medical issues, and then pay for them to go to boutique doctors to help them. That's the first thing I would do. I don't have any big thoughts, either. It's like, oh, if I had a million dollars, you know what I would do? Like, you know, like, I wear like, I have a sweat shirt that I'm wearing right now that I looked at it the other day, and I thought this has got to be 22 years old. I could afford a better sweatshirt. And just doesn't occur to me to replace it. I was talking to somebody yesterday who might come on as an advertiser. And they sell like, like clothing. It's nice clothing. And they're like, we'll send you some samples. I was like, Okay, thanks. And then I thought like, what am I gonna do with that? Alright, what kind of music do you like?
Jonathan 32:33
Music I generally listen to kind of hard rock music.
Scott Benner 32:37
What does that mean? In 2023? Give me two or three bands that you like.
Jonathan 32:42
Shine down Shinedown upheaval and Alter Bridge.
Scott Benner 32:48
See, we found where it's coming out. It's coming out through the music. Right? See, if you were my age, you would have listened to God would Will you listen to Metallica? Pantera, suppled, Torah stuff like that stuff you probably don't even know about or care about anymore. But it would have been similar. Did you see? Alright, I'm testing you. Did you see the Leonard Skinner tribute at the Country Music Awards The other night?
Jonathan 33:11
I did not. Yeah, that's an old person. That
Scott Benner 33:13
thing I was testing. Okay. All right. All right. Are you been a good sport? Are you are you are you having a good time? Yeah, we're having great time. All right, go. How did you end up doing this? Your mom forced you.
Jonathan 33:25
My mom was like, oh, it'd be such a good idea for you to compare Omnipod five to control IQ because you've done both. I was like, Yeah, sure. I guess I'll do it then. And then because you're so backed up, and she's like, having to schedule it out. This conversation happened? Probably February. Yeah. Late February, honestly. And so she scheduled me out to April. And she's like, well, obviously he'll talk about anything. So if you don't end up talking about that, that's fine.
Scott Benner 33:58
And your mom likes the podcast. Oh, that your mom likes the podcast? Yeah, she
Jonathan 34:05
listens to what's your,
Scott Benner 34:06
what's your one say?
Jonathan 34:08
I think the last time it was like 6.3. That's really
Scott Benner 34:12
good. Good for you. That's excellent. I mean, seriously, you managed that on your own and a six three and you're eating garbage basically hot trash. You just shovel it, you probably eat the box once in a while and don't even realize doesn't doesn't even taste any different? You know? So, okay, so you were on Basal IQ, then what did you do next?
Jonathan 34:30
Once control IQ came out. It was right to control IQ.
Scott Benner 34:36
And then at some point, you tried Omni pod five? Yes, but you're back on control IQ. Yes. Okay. So I know what I think the differences in the system are so I think I'm, it's gonna be very interesting to hear what you say. So first, tell me about the experience on control IQ and how you find it, what you use as far as its capabilities and how you might you know, monitor yourself And then how you kind of implement your ideas.
Jonathan 35:03
Well control IQ that like it can do the audibles and stuff like moves your Basal up and down as you need it. Least put
Scott Benner 35:15
Now Jonathan, you broke up this your your hillbilly to hold on, your hillbilly Wi Fi just broke up there for a second. You have like either like goats outside running on a wheel or something like that you have to go feed them or what? What makes that I'm just teasing. You just broke up for a second. So intro like you got it again. So
Jonathan 35:34
control IQ, like it raises your blood sugar and stuff. And you're not blood sugar, basil. And we keep our mind in sleep mode 24/7. So that tightens the like, in range time of what the pump thinks is in range. So it will try and keep it a more steady line because it's not expecting like the activities and stuff of regular day. And so that seems to help. Also in sleep mode, it doesn't do the auto Bolus is so it's not in the auto Bolus is are just the correction factor. And then I think it takes it's only 60% of what it actually would be. Yeah. So honestly, I don't feel like that would be it's too much of a difference without it.
Scott Benner 36:23
Have you? Have you ever tried running it out of sleep mode?
Jonathan 36:25
We did at the beginning, and we just decided that it'd be better on sleep mode. And and we just haven't changed it.
Scott Benner 36:32
Okay. Yeah, you know, it's interesting. I literally interviewed a person yesterday, who said the exact same thing. Like I know, I think the way they said it was I know you're not supposed to do this, but I run control IQ and sleep mode 24/7. And I've also had people on who are like, you don't have to do that. Like I have a couple of really good episodes about control IQ. One of them's called control IQ ninja. And I think one of them is called lazy control IQ ninja. But they were they're pretty helpful if you want to check them out. Anyway. Okay, so you're running it out of like, not really in the automated mode the way they I mean, the company is hoping I guess you will. But you're using it like that. You're I mean, you're a six, three. And he, you know, that's astounding. And it works for you. Do you use a lot of extended bonuses or things like that?
Jonathan 37:23
Not really, like, for some meals, like I know, like when I snack on popcorn or something I know that's always gonna hit me slightly later. So I'll Bolus just a little bit up front for that. And then do the rest extended. Sometimes I'll deal with pasta when I remember. But yeah, that's
Scott Benner 37:42
Ctrl. Like you lets you do an extended you don't have to Bolus the second time.
Jonathan 37:46
Control IQ lets you do it to our extended Bolus, and it'll let you switch the percentages however you need it. Okay. Okay.
Scott Benner 37:54
So then, what makes you try on a pod five? Is it just the idea of like, Oh, I could go back to tubeless.
Jonathan 38:02
Yeah, two plus was the main thing that drew me to Army part five. And part of it was also the algorithm and with the algorithm like we were doing decently well, obviously, we couldn't we put in our original settings, and then it would just learn from there. The reason we came back to control IQ was that, for us, it felt like that, it wouldn't stay consistent it like every time I switched upon, like, it would be good. And then I'd be low all the time, and then it would be good again. It's like it couldn't stay. You know,
Scott Benner 38:42
how long did you try it for?
Jonathan 38:43
I think it was a few months.
Scott Benner 38:46
Did you hear my episodes about setting up on the pod five before you tried it?
Jonathan 38:51
Like Bob may have but I personally didn't know him. Yeah, there's so
Scott Benner 38:55
it's, it's incredibly important when you set up on the pod five, to really, really know your total daily insulin and and to give that to it, and it wants you to I'm speaking generally here, but it wants you to be about 5050 on your initial setup, 50% Basal 50%. Bolus, and then it wants you to that then it sort of makes the decisions after that it figures out what it's doing. And it goes from there. I know that people who start that way, have a lot more success with it than not. But you're also manipulating the control IQ to a large degree, you're leaving it in sleep mode. So it doesn't make Otto Bolus is like you're you're adapting, control IQ to your life the way you want it to you're not just letting it run. And so when when you were letting on the pod five run, you were getting lower. Yeah, it tended to push me low. Was that around activity or any specific time or just generally? I
Jonathan 39:58
think it was just generally Why, like I'd be stable for a little bit, it would go. And sometimes I'd cracked it. Sometimes I wouldn't. But I'd always end up going back up to be studied for a little bit. And it ended up just being these kind of hills.
Scott Benner 40:12
Did you ever use an omni pod before the algorithm? No,
Jonathan 40:18
Omni pod five was the first time the first I had did you
Scott Benner 40:21
try throwing it into manual mode to see what happened.
Jonathan 40:25
Um, I can't remember if we did or not, we may have put it in manual mode for a little bit. Okay,
Scott Benner 40:30
I have a ton of episodes about on the pod five, that people should check out if they want, including a three part series, overview settings and connectivity 736-730-7738. There's an episode was somebody who set up there on the pod, but then heard the the series and they did a reset. So on the pod reset is 794. One what I'm what I'm going to tell you is that first of all, you should use whatever works for you. That's I mean, I want your life to be easy. So obviously doesn't matter to me what you use, but algorithms, you know, not even algorithms, diabetes, you said it earlier settings, everything settings, right your, your carb ratio, you have to have it right, your Basal needs to be right, your correction factor needs to be right, you need to understand the difference between you know, how, I don't know a piece of chicken with some beans and a potato are going to affect your blood sugar versus you know, a pizza that comes out of a box at two o'clock in the morning that even though maybe the pizza slice says it's 36 carbs, and the potato and the chicken and everything seems like 36 carbs or whatever, it's not going to hit you the same way that settings. It's so important throughout diabetes, but really, when you are setting up an algorithm if your settings are off, like nothing's going to work, and what happens to a lot of people doesn't sound like it happened to you. But what happens to a lot of people are, they are also they're kind of getting lucky or having good results by mistake. Sometimes, like some people over basil themselves and then eat to the insulin. And they'll say oh my onesies good. It's low and you know, blah, blah, blah. But that's not really right. Like your Basal shouldn't be set in a way where you have to eat or something's gonna go wrong. And that's just one example of classically how how people with diabetes have sort of, I don't want to say cheated, but you know, like, they've got their settings wrong, but it's still in the end working for them, like, quote, unquote, working for them. So you can't put bad settings into an algorithm and expect it to work. Because it's, it only knows what you told it. And if what you told it's not right, then your outcomes are going to be wrong. So anyway, I but I'm happy that you found something you like, the tubeless nature of it. You do prefer that over wearing it to pump? Yeah, yeah. I think you've ever tried again,
Jonathan 42:56
probably just depends on the futures got a bunch of crazy new technologies. So just honestly, depends on what comes out next. Yeah,
Scott Benner 43:05
man, there's gonna be a lot of cool stuff that happens in your life with diabetes. It's your you got diabetes, the right time, Jonathan. Do you ever think about it in terms like that? Do you ever think this isn't fair? Or I don't want this to? Do you have any psychological burdens from it?
Jonathan 43:23
Not really, like, honestly, the most psychological burden I've really had from it is like, just not wanting to deal with it. But other than that, it's not been like, too mentally hard on me.
Scott Benner 43:36
Would you describe yourself like that in other aspects of life?
Jonathan 43:41
Probably kind of a, there's definitely things in life where like, I just don't want to do it. But like, you know, it's a responsibility that you just kind of have to do and get yourself to do. So.
Scott Benner 43:55
Would you describe yourself as would have been anxious or nervous or any of that stuff?
Jonathan 44:01
No,
Scott Benner 44:02
no? Do you worry about low blood sugars?
Jonathan 44:04
Not at all. I trust the pump. You could say with my life, but that's kind of what it is. Yeah.
Scott Benner 44:11
Have you ever had a scary low?
Jonathan 44:13
No, not too crazy. When
Scott Benner 44:17
do you start feeling your lows? At what number?
Jonathan 44:21
So it depends on like, kind of the blood sugar's prior, like if it was a drop from like 200 that we just kind of kept pushing and it just started ticking almost straight line down. On the graph, I can, I can feel myself dropping fast like, I'll get like the hungry sensation and stuff. But when I like, if it's kind of more cruising, and then I just start going low. I can, like, I'll also like the main symptom is like I get hungry when I'm not normally hungry. And then sometimes I'll sweat like that's more of a nighttime symptom is I'll wake up sweating and my blood sugar will be low. I
Scott Benner 45:01
mean, is there a number where you're dizzy or disoriented or anything like that?
Jonathan 45:07
No, not. Normally. If it's like low low, like I'd say 50s 40s. Maybe. But like, if it's just 60s and stuff, just kind of, I'll be more of the hungry and wake up sweaty sensations. So
Scott Benner 45:21
how often were with what frequency? Do you think you see a 50? Blood sugar? Honestly,
Jonathan 45:27
not too often, it'll normally be like, with an off day where either I've been super active or like, I've been cruising high for a while, just some out of the ordinary.
Scott Benner 45:39
Yeah. And something. It's not usually a falling 50. It's kind of like a glide to 50. Yeah, okay. That's great. Well, I mean, how would your blood sugar fall with all that crappy food and you're right. I will share this with you. Like I said, my son is 23 just turned 23 Now, and he played baseball, since he was four. So in the spring, in the summer, in the fall, it was in the wintertime is the only time he wasn't on a baseball field. And there were normally winters after he hit probably, like, I'd say probably 1213 years old. Even in the winter, he was in a cage swinging back constantly, or throwing or you're working out or lifting or something like that. And he could eat rocks. Like if you fed my son rocks, he still looked like, like standing muscle. Do you know what I mean? Yeah. And then he graduated. And he kept working out for baseball for a while he was thinking about going to grad school, he got a few grad school offers to play baseball. He didn't want to do that. He thought about going down south to a pitching clinic cuz his fastball was up to like 93. And he's like, maybe I'll take a shot at this. But then in the end, he just decided to take a job. And he and he went and took a job. And inside of like, three months, he said to me is like, wow, I really have to be more careful about what I eat. And he didn't realize like he was eating a lot just to maintain, like, he was six feet 200 pounds while he was playing. He's like, I can't I can't carry this weight. He's like, first of all, I hate eating all this food. And he's like, he's like, I don't want to be this big. He's like, I'm gonna get like, I'm gonna get soft and five seconds. So he, he dropped 10 pounds. And he's, he's happier now. But he's also cooking for himself and making meals and because he's he's also trying to save money, you know? So he's, he's preparing meals on the on the weekend and taking them to work with him during the week and stuff like that. But yeah, my my point was, Jonathan, your body won't let you do that forever. So be careful. Yeah. Okay. And you would use less insulin if you ate cleaner foods, too. Yeah.
Jonathan 47:52
But, you know, tends to be more expensive because America convenience
Scott Benner 47:58
is that is is expensive part of the issue. I mean, for our kids, there's a lot of kids to take care of. Yeah,
Jonathan 48:05
I don't think expense really is like, I know, my parents follow like a budget stuff. So I don't think expense is too much of an issue. We have good insurance. So like we get most of my stuff for free. So cool. Well, that's not something we have to worry about.
Scott Benner 48:22
Jonathan, that's interesting. If you said to me, what do you pay for insulin? I don't think I pay probably like $20 Every time we get insulin, right. But I also have insurance on myself, my wife, still my son for a little longer. And my daughter, and out of my pocket, I think that cost like $8,000 a year just for the insurance, then I have co pays and deductibles to reach and probably by the end of the year. I'm guessing my insurance costs me 12 $15,000. But when you the day you buy the insulin, you're like, oh, look, it was free. So it's not free, Jonathan, is what I'm saying. But you'll be an engineer, you'll be able to pay for it. And you're getting helpful as it goes, right Jonathan? If you listen to me, you're going to be an engineer with what I'm going to say is like a 511 Volleyball playing wife who also has a good career. So all you got to do you want her to be blonde or do you not care? I honestly don't care if she plays volleyball, she's gonna be blonde, Jonathan, so maybe maybe we'll get away from the volleyball that if you don't care, because you're gonna get what do you think? What do you think about generalizing? Jonathan? Are you a fan of it? Or do you find it repulsive?
Jonathan 49:34
I don't really care. Like, it's a good way to describe it.
Scott Benner 49:38
So I have a, I have a group of people ever real question for you here that you don't I mean, seriously, think about it for a second. You don't have to answer. Okay. How much of political correctness it touches you at 16. Do you feel it the way older generations Do or do you Not? What's my question here? If someone wants you to refer to them by a pronoun, or if someone wants you to do something that seems just not how it would occur to you. Like when that happens in my, my family, my kids are just like, oh, yeah, whatever, that's fine. And that's, I think, a real generational thing. Like there's no, no judgment. No, like, well, this is what I think like, I find kids your age to just be like, yeah, man live and let live, whatever. And I don't just mean about pronouns, but about everything. Do you find yourself? Just going with the flow? societally? I don't know if any of that made sense to you? Because you're 16
Jonathan 50:44
Yeah, I guess, like, kind of just like, going with, I guess you could say the crowd like, just kind of chalant Lee moving with them. You know, personally, I don't take like aside either way. But like, if somebody asked me to refer to them away, I'm like, Cool. I'll do that. And it's like, not a big deal. To me. I don't really care that much about that kind of stuff. Stuff
Scott Benner 51:08
like color and sexuality, like just as meaningless to your generation. Right?
Jonathan 51:13
Yeah, I guess you could say that. Yeah. No, look at it. Yeah. It's
Scott Benner 51:17
terrific. Actually, Jonathan, I just, like I grew up in the 70s. Like, when I was 16. It was, Geez, 8687. Maybe. And, like, if somebody said, anything like, like, oh, Bill is gay. Everyone be like, Oh, my God, Bill's gay. Like, like it would be it would be like a whole thing. Do you know what I mean? Like this? Yeah, it really the world was like just an incredibly different place. Not that long ago. And I'm, I'm very, like, heartened by how well your generation and the generation Nish before you two has just decided like, and I don't even know if they've decided, I think it's just the way it is. But all that crap is gone. And I'm thrilled it's gone. Like so. Um, it's very night. I think it unburdens you to just live and not be running around. Taking your opinion or your judgment or like meanwhile, nobody even has an opinion. They just they form one because it's asked of them. That's what you guys don't do anymore. You just go right on. Like, that's what that's what they said. And then good. And I think that's really terrific. So, I mean, we just got to keep you off the math, right? I mean, it's Kentucky in this right. I mean, we're not we're not lying. Are we here? Jonathan? I gotta keep you awake. Yeah, right. Like, so. That's cool. You want your teeth. Jonathan. I just want to say that right now. Seriously, so what have I not asked you about so far?
Jonathan 52:45
You've hit like everything.
Scott Benner 52:47
Do I talk too fast for you? Or you were okay.
Jonathan 52:50
No, yeah, I didn't understand you. Understand me.
Scott Benner 52:53
I didn't mean like I was from Mars. I was like, like, I was like, people.
Jonathan 52:58
I know that like some people, the deep south they like talk really slow. And it's hard for them to understand people who generally talk faster.
Scott Benner 53:07
In a million years, like I would not have, you have no accent that I can discern. Like, I don't hear anything at all. Like, do you feel like you're like, sound like you have a piece of straw on your mouth and you're wearing a hat or no?
Jonathan 53:19
I don't think I sound like
Scott Benner 53:22
no, you don't. You could have told me you were from Connecticut. I would have been like, Alright. Sounds Why did I pick Connecticut? Oh, I'm doing a speaking thing in Connecticut. The end of the month? That's fine. That's in my head. It's a private thing. I can't tell you if I don't think the group wants it made public. So I won't tell you about it. But it's really interesting. That was nice for me to say it was really interesting. But I won't tell you, Jonathan, I'm doing this really culturally interesting thing that I will not be telling you about. I'm going to tell you after the recording is over because that was not fair to you. The rest of you are screwed. You're not going to get to know Him. Have you ever listened? Has your mom ever said like, Hey, you listen to this episode. Not
Jonathan 54:00
really, like she has like, because we're in a small town. We go to endo and Lexington, Kentucky so that's about an hour and a half drive or so and she'll put the podcast.
Scott Benner 54:15
I hope that I hope the radio in the car works better this internet connection today.
Jonathan 54:18
Listen to those episodes. Okay. Yeah.
Scott Benner 54:20
Alright, so back to my question that I wrote down from earlier. Are you annoyed by like, how is your mom like one of those moms who's like the guy on the podcast? Or does she talk about me like I'm a person in your life or anything like that?
Jonathan 54:33
Not really. She's just like, I heard this on the podcast and like, you would maybe we could try it out like Okay, sure. Yeah, I don't really find it annoying.
Scott Benner 54:42
She seems like a really good mom. Do you think she is? Yeah, she's
Jonathan 54:46
a great mom. Yeah, but
Scott Benner 54:47
I mean, are you saying that because she's your mom. Or have you witnessed other mothers and you're like, I got a better one. I haven't really? Yeah. Not willing to. Not willing to out any of your friends for having a wacky mom. Okay, that's nice. That was nice.
Speaker 3 54:59
I just like there's some times people come on and they're like, oh my like, like, it's constant like the podcast, Scott, I don't who's the host? Scott? Like, your dad hasn't said anything. Like, stop already. And that is, and I'm gonna let you answer that. Then I have another question.
Jonathan 55:14
Hi, dad. He's kind of more on the sideline with the diabetes, but like he, he also follows my index card numbers. So, and he he roughly knows, like what I have to do. And so
Scott Benner 55:27
yeah, so that was gonna be my next question. Your dad's not that involved with all this? Not
Jonathan 55:32
really, because he, honestly, most the time he's at work. He works like eight to five. So he's at work a lot of the time. So he's not like always at home having being able to, like, kind of hover over me.
Scott Benner 55:48
Yeah, he should get a podcast, it frees up all kinds of time in the middle of the day. So you think your dad, what kind of podcast would your dad had if he started one? He
Jonathan 55:58
is a he was a history professor. Now he's the department chair at the college. So very cool. I'd say that either something like with history or education is
Scott Benner 56:09
excellent. Are you as you come from an academic but what's your mom do?
Jonathan 56:13
Oh, she's an aide at the local elementary school and an adjunct at an online adjunct at a community college in Mississippi. Very nice.
Scott Benner 56:27
Ice. Excellent. Wow. You're used to you have younger brothers and sisters. How old are they?
Jonathan 56:34
The youngest just turned nine. And my sister is 11. And my brother is 213. Do
Scott Benner 56:46
you think that they have any impact from your diabetes?
Jonathan 56:49
They definitely see it. Like, there's no doubt about that. And they like know about it. My youngest son, my youngest brother sometimes says that he wishes he has diabetes, so he can eat snacks whenever he wants, but that's not true.
Scott Benner 57:05
Yeah. Do you think? Do you think any of them have ever? Like confided in you or are they scared? It's gonna happen to them?
Jonathan 57:13
It's probably one of the thoughts. That's like the very back of their head. They did. They don't seem like too worried about it or anything. So
Scott Benner 57:22
you've never spoken about it with them though.
Jonathan 57:24
Not really.
Scott Benner 57:25
Gotcha. Are they all like you? Are they like tall and smart and nice?
Jonathan 57:30
Most of them have good. They all have good grades. Yeah.
Scott Benner 57:35
You don't understand yet. Six. Three is a it's a pass like you won. Like you know that Willie monka ever know the Willy Wonka in the Chocolate Factory? Where? Yeah, and they commonly give a golden ticket to somebody. That six three is a golden ticket. You have no idea. Ah, Jonathan, I'm jealous. Do you understand? The girls are gonna line up at college to go out with a six three, Jonathan. They're just gonna be like, Oh my god. He's so tall. They how's your face? Is it okay? You know what I mean? Yeah, sorry. Yeah. All right. So you got a good face and you're tall and you're athletic. How much you weigh at six, three?
Jonathan 58:12
around 170 or so.
Scott Benner 58:14
All right, we'll put a couple pounds on you. Right like just gonna fill it because you're not at the age. You're still growing. Your dad bulky. Is it going to be okay.
Jonathan 58:21
Are you going to be like, oh, yeah, yeah, my dad's pretty bulky.
Scott Benner 58:24
You got the world by the balls. Do you know that term? Do you know do you know? Yeah. I hate you. What do you think of that? Oh, man, if your dad was my son's dad you'd be watching my son play centerfield on a professional baseball field. Right and I was the thing hold my kid back. I held it my wife my wife is five nine that's tall for a lady you don't know that. But it is. And. And every guy in her family nice and tall. Over here. Here I am five nine. My son grows up to six feet and stops. I know he's pissed at me. He's like, I'm telling you if you have no idea if my son was two inches taller, he literally would be playing baseball right now. And I if he ever hears this, he's gonna be like, yeah, you son of a bitch. Use me up. Hey, that's a good question. You guys curse.
Jonathan 59:14
My friends do a lot but I keep it more moderate.
Scott Benner 59:17
And around the house. Anything around the house? What's the harshest word you hear around the house?
Jonathan 59:23
like dang it or something? They don't curse very much.
Scott Benner 59:26
Dang it. I'll be darned. Yeah, it's something else. Yeah. What's your favorite curse word? You don't have to say you can just allude to it.
Jonathan 59:34
The one yeah, like I don't know honestly. Know
Scott Benner 59:37
how it happened when you're angry. trying to be funny.
Jonathan 59:43
Like I said, I don't curse very much. That is
Scott Benner 59:48
Jonathan, there's a lie in the situation. There's a line of women and their daughters outside of your house right now. I swear to you like as soon as this goes up, just they're going to be out there like locust. You're gonna have to call the cops like Aaron You're really amazing. I would um, I feel like talking to you. I feel like I've done a bad job with like, it was like, Oh my God. I mean, unless you snap and shoot a bunch of people, you and I don't think it's happened and you seem like you're together. Hey, if I said to you of your friends which one's going to snap this one jump into your head right away?
Jonathan 1:00:23
Probably.
Scott Benner 1:00:28
My good stuff, man. i You're terrific. Tell your mom she was right. I usually I get notes like her note says, Let me read it to. Here's a question you fill out when you're coming in about topics you want to cover. She says I'm filling this out for myself. But I think but I am thinking maybe it would be best to have my son Jonathan on who has type one. He will be 16 years old when you record it. She goes on I read this Jonathan and from my perspective, I'm like, oh, here we go. Proud. Mom's gonna put this kid on. It's gonna be a marble mouth and I'm gonna say anything. I'm going to be dragging questions out of them not going to be able to joke because he's not going to understand and you were just terrific. Like really good. Tell your mom she was spot on about this. And every and everything else and I definitely think she's not a layabout. Just so you know. About is that a word people use? Where did that even come from? Let's look it up together for a second lay about who derogatory British term a person who habitually does little or no work? Yeah, I was right. And I think we all know what creep is. So we'd love to look that up. Yeah, but um, alright, so. I don't know what to ask you. I do. Wait. I'm sorry. I do know what to ask you. Can you just hang for just a couple more minutes? Yep. All right. Err, I heard the South that time. You were like, yep. That I got it. There are movies to kids your age care about going to a movie theater? Kind
Jonathan 1:01:57
of sorta like, it depends if there's a good movie. Like it won't. It's not the most. Like here. We don't have that crazy big movie theater. Yeah. It's like, I think it's six or seven, maybe six or seven theaters? I'm not sure. Honestly, because it's been a few. It's been a while since I've been. Yeah. So you don't
Scott Benner 1:02:17
go to movies frequently then? No, not
Jonathan 1:02:20
frequently.
Scott Benner 1:02:21
Your generation is ruining something that I love. It's okay. Don't worry about it. I mean, how about rap music? Like rap music?
Jonathan 1:02:28
Oh, yeah. I like yeah,
Scott Benner 1:02:30
let's be like, go to let's let's be alright. We'll be controversial. For a second though. Kanye is terrific, right? Yeah, he's gonna get me Oh, my God, just it just pumps he is. appears to be a terrible person. But, but the music is ridiculously good. Did you see the other day that he tweeted? That he saw a movie with Jonah Hill in it. And he's now doesn't have a problem with Jewish people. Anyway, I
Jonathan 1:02:56
did see that out of his mind.
Scott Benner 1:03:00
I was like, What are you saying? Like, just not ironically, he meant it. He I saw 21 Jump Street and all that stupid stuff I've been saying for the last six months. Forget it. Like, I'm like, Oh my God, you need help front. But those songs are I mean, my God, you could put Kanye on forever. And it just you could put on his first album and not know any of the songs and listen to it straight through. It's fantastic. Yeah, yeah, man. But no, I mean, just really like he's a genius. And they say there's a thin line between what madness and genius and he's, he jumps on both sides of that line. That's for sure. Anyway, I am not buying a pair of $200 plastic shoes. I don't give a crap how good the music is. But that's neither here nor there. All right. And I you know what's happening right now. I'm out of stuff to ask you. But I don't want you to leave. I'm enjoying your company. Oh my god. Hey, you don't know how to edit audio do I could hire you want to edit? My God? teach yourself how to use some editing software. I'll hire you to edit the podcast. I would love to talk to you every day. How did you? How much did you hate me? Or how did this go for you?
Jonathan 1:04:18
I enjoyed myself is fine. Good.
Scott Benner 1:04:20
Good. I'm glad. I want to tell you like I'm obviously not your parents. And I have no no right to tell you. I'm proud of you. But I for a person I met an hour and 10 minutes ago. I'm very proud of you like the way you're handling your blood sugars. And you know the responsibility and the pressure seems to roll right off your back about it. I'm very impressed. It's really something you should be really, really proud of yourself. I hope you are.
Jonathan 1:04:48
Thanks, man. I do appreciate that. Of course. Do
Scott Benner 1:04:52
you feel it ever? Do you ever look up and think man I'm doing more than kids my age people are adults too. Uh, like, you know what I mean? Like being?
Jonathan 1:05:01
Yeah, you know, I'm saying, kind of like, I just kind of see it around me like, I wish somebody else would kind of know and like, step up kind of,
Scott Benner 1:05:12
you know, tell me what that means you need help? Well, no, it's
Jonathan 1:05:16
not that I need help. It's just like, if more people like realized if they just did this that would like, less than somebody else's burden just like this much or something like that, like, I see that stuff.
Scott Benner 1:05:28
You're worried about other people.
Jonathan 1:05:31
Kind of, like, oh,
Scott Benner 1:05:33
wait a minute, you have friends, you have friends with type one who aren't doing as well as you are?
Jonathan 1:05:39
Or it's not that they're doing is not doing as well. But it's like, I know, like, I don't want to be overbearing on like, this huge group of people that I know, like, I could help. So like, I kind of stepped back, but not really. And I'm like, I just see something and I'm like, I know, such such and such did this, they would help this or that, you know, just just like a group that whole or whatever. Do
Scott Benner 1:06:05
you think it's kind of a lead by example thing? Do you think that them seeing you? You know, take bolusing seriously, when you guys are together and you're eating or something or testing your blood sugar once in a while, if you're like, I'm not sure if my CGM is right, let me check. Like, do you think that makes it easier for them? to maybe do it themselves?
Jonathan 1:06:22
Yeah, I feel like if you just like, do something around people more, it's, you know, lead by example, they're gonna see that and they'll be like, Oh, it's, it's alright, to do this or that, you know,
Scott Benner 1:06:33
I will tell you like,
Jonathan 1:06:36
it's also like doing it around other people like just being confident about who you are, you know? Yeah. Like, you don't need to be embarrassed if something you can't control.
Scott Benner 1:06:44
I think it's a big deal. In general, but around diabetes, specifically that you don't hide your diabetes, I think it's, it's very important for you psychologically, I will tell you that I I've spoken to a lot of adults who have friends who have type one, this is a common message from people. You know, I'm in a group, you know, I have four or five friends who have type one diabetes, and I see them not taking care of themselves, and it breaks my heart. And I don't know what to do. Like, that's not an uncommon thing to have happen. And I know you're not saying your friends are just ignoring it. But you're seeing little things where you're like, Oh, if they just did this, or, you know, man, that's 30 carbs. It's not 20. Like that kind of stuff, right? Yeah. Yeah. Well, that's nice of you to be concerned. And I think it's incumbent upon me to tell you that you are not responsible for other people. So don't let it burden you. But don't let it stop you from caring either. You don't need me to tell you this. You're parented. So Well, I'm sure you're sure your mom has that embroidered in a pillow somewhere? You don't I mean, the other one's going to turn out good to the younger ones, or is one of them getting off the rails? They all seem
Jonathan 1:07:52
on the rails right now. But they're not in high school yet.
Scott Benner 1:07:57
When in that's when the pressure comes, do you think?
Jonathan 1:08:01
I think like, middle, like middle middle school, I guess? Sounds weird. No, it does then, like high school? You know, I feel like that's when they start like getting almost like the end of the real world. Not like it's not necessarily real water. But you get it's a whole slew of like, new things you have to deal with to stay away from and stuff. You know,
Scott Benner 1:08:26
you saw weed in middle school? You did, right. vaping is
Jonathan 1:08:30
probably vaping. I didn't see vaping in middle school.
Scott Benner 1:08:35
Do you think your mom would be surprised by any of this stuff?
Jonathan 1:08:39
Honestly, probably not. Now, obviously, like when she was in school and stuff. It wasn't like as bad as it was. It was more of cigarettes and stuff. But now it's the vapes. So it just kind of changes over time. Yeah. Do
Scott Benner 1:08:54
you think she'd be shocked that you said cocaine earlier?
Jonathan 1:08:58
Maybe, yeah,
Scott Benner 1:08:59
my kids tell me it's everywhere. Like, like, just everywhere. My son was like, it was in college. Like it was. My daughter talked about, like you hear people talking about in high school, you know, a college again, friend groups, you gotta you have to have a really my daughter had a pretty small my son to like a pretty small friend group to avoid stuff like that. Yeah, yeah. Well, man, I don't know. You're terrific. Like, I know, it sounds weird, but you really are, like, go forth and prosper or whatever. And I will. What did I promise to tell you when we got off here? Oh, where I'm going to speak. It's not that exciting. But I'll tell you in a second. I thank you so much for doing this man. I
Jonathan 1:09:42
really appreciate it. Yeah, no problem. Cool.
Scott Benner 1:09:44
All right. Hey, how great was Jonathan, thank you so much, Jonathan, for coming on the show and sharing your story. I also am going to thank Dexcom Dex comm.com/juice box you can wear the same CGM that Arden is wearing the Dexcom G seven, or you can go get the G six doesn't matter to me whatever you want they got at dexcom.com/juice box. Don't forget to check out the diabetes Pro Tip series at juicebox podcast.com diabetes pro tip.com or between Episode 1001 1026 In your audio player. If you're looking for community look no farther than the Juicebox Podcast, private Facebook group Juicebox Podcast type one diabetes, but it's for everybody really you have type one type to adda gestational, I don't care. Come on over, meet one of those 43,000 members and get started today. If you have type two or pre diabetes, that type two diabetes Pro Tip series from the Juicebox Podcast is exactly what you're looking for. Do you have a friend or a family member who is struggling to understand their type two and how to manage it? This series is for them seven episodes to get you on track and up to speed. Episode 860 series intro 864 guilt and shame episode 869 medical team 874 fuelling plan episode 880 diabetes technology episode 85 GLP ones metformin and insulin and an episode 889 We talk about movement. This episode is with me and Jenny Smith. Of course you know Jenny is a certified diabetes care and education specialist. She is a registered and licensed dietitian and Jenny has had type one diabetes for over 30 years. Too many people don't understand their type two diabetes, and this series aims to fix that. Share it with a friend or get started today.
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