So I just got off the phone with what must be the twelfth parent of a newly diagnosed child that I’ve personally spoken to.  People normally reach out through this site but today I got a call from a family friend whose nephew was diagnosed on Christmas day.  I’ve had this talk so many times now that I’m not sure that I even need to be there for it, if you know what I mean.  Every time is the same, parents so new to the type I game that they aren’t yet sure what they are scared of, they just know that they are.

 

When I get off of the phone I always have the same hollow feeling in my stomach.  It feels like it’s happening again to us, just so many terrible memories...  but knowing how much the DOC helps other people is all I need to make it all worth the trip down bad memory lane.  

 

This mom will call and email for a few months and then, poof, I won’t hear from her again.  I love that part... when they stop calling.  It’s then that I know that they have it and that’s just the greatest feeling...

 

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It's true - the hollow feeling of it happening all over again and then - you don't hear anything and it's a good thing. :)

Friday, January 7, 2011 - 02:36 PM